Rhuematologis result: Hi guys as you... - Fibromyalgia Acti...

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Rhuematologis result

Zita71 profile image
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Hi guys as you know I went to specialist 3 weeks ago I spent about 30 mins with her. To cut a long story I asked the Doctor surgery to send me copy of it I was told no so I called back and said I want a copy so I eventually got it x x on it stated that I have vitamins d deficancy from last year Dr surgery had never once told me (36) then she states possible celiac disease again I have mentioned this to Dr before but was told I never had it x x I have a call with Dr on Tuesday I will not be missing him and hitting the wall sorry for ranting

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Zita71
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Hi Zita71

Sorry to hear that you're having trouble getting information from your doctor. When I went to see the consultant rheumatologist, I asked her to send me a copy of all correspondence/reports she sends to my surgery. She now gets all health proffesionals who deal with me to do likewise. I insisted that It was important to me to have some knowledge of what was going on so I could at least be prepared for tests coming up etc. She is brill and liases with my other HPs to see how everything affects my condition. I know from reading posts about others' docs how fortunate I am to have a consultant/gp who are believers in fibro. I am firm but not rude with them and say I want to help myself as much as poss to cope with it all. Before my old gp left I asked him for referral to a gp who 'gets it' and struck lucky. I don't know how easy it is in your practise to get referred to different gp but its worth insisting if you can. I don't know where you live, i,'m in Cornwall. I truly hope you get some answers. You don't to reserve to be treated this way and have 'patient rights'. All the best.x

Zita71 profile image
Zita71 in reply to

Thanks for your x x x

TheAuthor profile image
TheAuthor

I am so genuinely sorry to read that, and I sincerely hope that your appointment goes well for you.

All my hopes and dreams for you

Ken

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