Been in orfull pain in Upper. Back no sleep for two nights going in hospital next week for foot operation so thought I would see doctor .

[saltvingar]

today just to make sure it was the fibre she said I had inflammation in my back it was not me own doctor so I thought I would ask her how many patients she had with fibre I cauld. Not believe her answers she more or less said she did not believe in fibre that really made me feel good I did not think there where any doctors left like her my husband got angry with me and said I am sure she did not mean that I will definitely have a word with my doctor a bout her when I next see her that's all need to be told I have felt very angry about this all day which have not helped the pain just thought it would make me feel better telling other people who understand hope you are all having a pain free day God bless you all xx

[TheAuthor]

Hi saltvingar

I am so sorry to read that you have been left feeling this way after your appointment. I have just replied to somebody else who also feels so low after coming away from seeing a specialist, and it is really unacceptable!

I genuinely hope that your operation goes really great for you and that you get the desired results. It may be best to stick with your usual GP from now on?

All my hopes and dreams for you

Ken x

[denvajade]

we don't need this sort of treatment it sets us back1 I DO FEEL SORRY FOR YOU.

[saltvingar in reply to denvajade]

Thanks for that feeling a bit better today spent the morning with my 14month old great grandson he always cheers me up but there's one thing for sure I will not be seeing that doctor again

[loppyloo61]

Hi Saltvingar.

I am sorry to hear you are in so much pain and unable to sleep for the past two nights, I can really empathise with you! Also sorry to hear about your bad experience with the Doctor who does"nt believe in Fibro!!

I had a similar experience to this a few years ago when I saw a Neurologist. Although I had been diagnosed many years ago with ME/CFS. When ME was known then a "Yuppie=flu!">

He started to take my medical history only to inform me that he did"nt believe/agree with ME/CFS, that in fact it was all in my mind!! I should have put my coat on there and then and walked out! He made me feel inferior as if I was just wasting his time and diagnosed me with "Depression!"

Well if I was"nt depressed before I went to see him, I certainly was when I came out!

I had a second opinion a few weeks later by paying private, which in my opinion I think it is totally wrong but was left with little choice as the waiting-list to see a Neurologist is unbelievably long!

This Neurologist had studied in London and researched into ME/CFS and immediately diagnosed me with Fibro. These Doctors are not Gods, although some of them like to thin that they are!

Although I was diagnosed with yet another condition I was just so grateful to him that he believed me and it was just like a jig-saw puzzle where all the pieces fitted into place! Armed with the diagnosis of Fibro has enabled me to get the right help for the condition I have had for many years! To be told the pain is in your head just amazes me!! I wish I could just plug our pain into some of these Doctors who question the degree of pain we endure!! On a Scale of 1-10!! How many times have I heard that one!

What about screaming out in agony in the early hours in pain, waking the whole household! Can they relate to that, or so fatigued I can fall asleep almost standing up!!

After a mis-Diagnosis on my son, we ended up taking him to London. The Professors there sat us down and just did"nt know how to tell us the seriousness of all the Rare Syndrome, Dystrophy, life threatening illnesses they had found.

So I don"t have a problem in Questioning any Doctors who I see now!

Best of luck for your operations on your feet next week, I hope everything goes to plan for you.

This is a Fantastic Site, where we can come and let off steam. I have had the most valued advise, support, kindness and care shown to me by the members and I am so grateful to be apart of this Forum.

Sending you positive healing energies & (((gentle hugs)))

God Bless. Betty Baby

[saltvingar in reply to loppyloo61]

My eldest son like you had ME thirty years ago when it was known as ypee flu but we where very lucky at that time we had a great GP who believed in ME I was not quite as lucky with fibre it took a long while before I was told it was fibre like you I wish these doctors could feel our pain then I do not think they would say it is in the head the same thing has happened with my foot three years ago I had a arthritic lump removed from my big toe and for the last three years I have been telling them that I was still getting a lot of pain and they tried to tell me it was normal but when I saw the specialist in January he admitted a loan had operated on my foot and made a mess of it the bones have not joined together so now have to graft bone from ankle on to the toe why on earth they do not believe us I will never know I think we know our own bodies by the way my son is much better but I can still see him not looking to good at times I am sure it is a family thing must end as it's very late and will try and get some sleep? this is a great site and a big thank you to all the leaders xx