Hello everyone!
I’m new here & really pleased to be here.
My doctor’s surgery phoned today, as the doctor wanted to see me, I said I can’t make an appointment as I truly don’t know if I’m going to be well enough to keep that appointment due to the horrendous pain & sheer exhaustion. So they got me in today as I did feel up to it - a little...
For as long as I can remember my body has been very sensitive to touch.
I carried on through life, maybe just thinking it’s tiredness, with having kids, work life etc....
As I got older, all the time, this pain is worsening & exhaustion is way off the scale. I started to go to the doctors after years of tablets (antidepressants) I was actually beginning to believe this has to be all in my mind. Because no antidepressants where working for me ever. Also I had nothing to be depressed about apart from pain.
Years & years of this! The last straw for me was a couple of years ago - l got a load of tests done, every test you can imagine from , the usual MRI etc..., ULTRASOUND, blood to DNA testing etc...( this came about due to seeing a new, brilliant doctor as my doctor was off that day) so while waiting for different tests to come through, i went back to the doctors (well actually my amazing husband had to near on carry me)!! As the pain was unbearable!!! My regular doctor was there (no tests had come back yet). He had that look of, not you again, so my husband said she needs something for this pain, no over the counter pain relief is working! After the doctors usual sarcastic comments, he finally actually said , the only thing left I can suggest is to refer you to a psychiatrist. Well I don’t know what happened but I found a voice and stood up to that doctor on mannerisms, conduct & professionalism. My argument for this was: i was & am still, happy in my life, there’s nothing I need or want, as I have all I need in wonderful friends, family & a happily married life for over 30yrs! My work life suffers for obvious reasons but I can still work from home on goods days. I also added - I hope you don’t treat your other patients like this!
He phoned us that evening and we’ve never heard him speak with such empathy & professionalism. He conducted himself, as I think , he would like others to conduct themselves to him. He went all out to help. Which to me, is a basic human thing. If I thought a psychiatrist was right for me at anytime in my life & could treat my pain I would have no problem seeing one. But nothing was indicating that’s what I needed.
My test results came back with hemochromatosis over 3000 the normal level, overload high iron. Further tests came back so went to the specialist for that result was diagnosed with Arthritis.
The new doctor that started all this said you may have fibromyalgia I was like - what’s that.
So at present for hemochromatosis (which for me is genetic from my mom & dad) I have the blood extraction regularly but have to miss appointments too. Parking fees are a nightmare so is finding one.
For the Arthritis I’ve been trying the first lot of tablets absolutely horrible - that’s why I saw the doctor today, another new doctor - she asked how I was getting on with them I told her , breathing ploblems ( I don’t smoke or drink alcohol) pounding headaches, sickness, dizziness other side effects & my hands turning yellow & peeling. I showed her the picture of my hands , she was horrified & told me not to take anymore - I said - I stopped already. So she sent an email to my specialist to get me an urgent appointment. I said to the doctor - in your experience is this a normal symptom/reaction to Arthritis to have this amount of pain - where now I can’t even be touched hardly without screaming in pain - she could obviously see how much pain I was in every part of my body hurts so bad I can’t even put it into words. She said that sounds like fibromyalgia. I said to her your the second doctor that has said that in this surgery. I asked her, can you have that & arthritis , she said yes & typed it up in my medical records.
When I go back to see the rumatolagihst I will put to him what two doctors have said regarding fibromyalgia. I will also ask is there any link with any of my diagnosis.
When I go for my blood extraction I did find out a little bit about fibromyalgia but needed to find out more - which lead me here
apparently it was a nurse/nurses who named it fibromyalgia (Fibro - myalgia.).
The nurse/s in charge, that does my blood extraction, says so many patients that go to them get misdiagnosed to such an extent the doctors actually give their patients iron tablets !!! Were there to rid our overload of iron!
I’d love to know if anyone here knows if there is a link between Arthritis & fibromyalgia. Is it because lack of diagnosis too late? Was or maybe there is something before that’s not being picked up?
I wish everyone of you all the very best & I can say I know how feel:). May xxx
Is this Fibromyalgia?
Is it Fibromyalgia? 
Just b een told I have fibromyalgia & osteo arthritis
Fibromyalgia 
Fibromyalgia
