feel really down

[linlit]

just found out my 2 year old grandson has epilepsy and on top of a lot of other things that have happend in the last few weeks it has devestated me

lin

[Cookie72]

So sorry to hear that Lin, must have been an awful shock, things have altered so much these days, they have come so far and there's is so much they can do, my late husbands brother had epilepsy and years ago there was nothing they could do, but nowadays it's so different...even so I feel for you, plzz don't let it get you down too much as it will aggrevate your fibro, then you won't be much fun for your grandson, I don't know how old he is but whatever age they always need there nan, ...we are all here for you, please feel free to pm me if you need to get anything off your chest...you take care, will be thinking of you and your grandson, his mum and dad must be so devastated too, ......sending you gentle hugs and a handful of sunshine Lin.....Dee xx

[TheAuthor]

Hi linlit

I am so sorry to hear of your heartbreaking news. I hope the little one is doing well and although at two years of age he won't understand it doesn't make it any easier for those who love this wonderful and beautiful little fella. I can tell however from the tone of your post that he is clearly a well loved and cared for little chap who will grow up receiving all the love and tenderness that he rightfully deserves, and do you know what? You will be there with the biggest smile and the warmest hug that he could ever hope for.

Please take care for this little fella will grow up shouting 'nanna' in excitement every time he sees your face!

Ken x

[TheAuthor]

Hi bluebell99

I was just replying to linlit when I read your post with a heavy heart and deep sadness. It is always so painful when somebody that we love so much is stricken with an illness. I am sure however, just like linlit, that your granddaughter is loved and cared for in such a beautiful and tender way that she will grow up with excitement and love in her eyes every single time that she sees your smiling face.

Please take care.

Ken x

[bobchewie]

Thats awful for you..I am stressed out after getting violent threats made against me on youtube ..they even asked ppl for my address do they could visit me a attack me...how shit is that ?

[TheAuthor in reply to bobchewie]

Hi bobchewie

I am so sorry and shocked to hear that you have been threatened in this way. If you report the incidents to YouTube they have a policy for 'code of conduct by users' and they can take the necessary steps to help you sort out this issue.

Please take care and good luck

Ken

[bobchewie in reply to TheAuthor]

I had the police visit me on the matter I gave them screenshots of the threats

[Ginsing]

What bad news Linlit, but it is not the end of the world remember it can be controlled. He even may grow out of it in time. So although you feel completely devastated now take heart, time will tell and hopefully with care all will be well, so you must be strong. Here is a hug (()) remember we are always here for you xgins

[moonstonebright]

Hi Lin, so sorry to hear this Lin! I know it's not much constellation but the doctors can help to manage Epilepsy much better these days. Seizures are awful to watch I know! I really hope that his neurologists. Can help him. Goof luck to him and you! April

[Hidden]

I know 2 young ladies who were both diagnosed when the were little. Both are now gown up with children of their own and have very little trouble with fits so long as they take their meds. Love to your gandson and I they manage t quickly find the right meds for him. hugs Sue

[fairycazzie]

Aww sorry linit not nice to hear about your grandson bless him,

Hugs and hope as time goes by it gets easier to deal with for you all xx

[Dorothy1952]

I am trying to come to terms with ill health and the death of my sister in law also a tribunal for esa dont know hiw much more i can take x x

[Hidden in reply to Dorothy1952]

oh Dorothy I am so sorry that you are having a tough time at the moment.The grief that you are feeling as well as the worry over the tribunal must be making your symptoms worse.If you go onto the benefits part of the web site you will find advice on coping with claiming benefits.I have not been to a tribunal for myself but have been twice with my husband and found that it was not as bad as I expected. In fact the second time they were very nice and recomended that they did not send for him again within 3yrs. I hope that you get a good result at the tribunal and then you can relax and hopfully your symptoms will ease

[TheAuthor in reply to Dorothy1952]

Hi Dorothy1952

Please can I offer my deepest condolences to you on the loss of your sister in law. This must be a truly terrible heart breaking time in your life. From the sounds of it, you have so much to cope with at the present time. I sincerely hope that your tribunal for ESA is successful and that you can start to come to terms with the sad changes that have been forced upon you.

Please take care.

Ken x

[Dorothy1952 in reply to TheAuthor]

Thank you I have a bit of hope I have been told even if I fail I can go to doctors and claim ESA as a new claim and after all I only need to claim for five months as I retire on the 6th of July x

[Fibrofoggiest]

Hi linlit, I'm so sorry that your lovely grandson has epilepsy, what a sock for you all and I can understand that if you are struggling at the moment this must seem like the last straw However as others have said treatments have improved so much which is very encouraging, and I'm sure it won't take them very long for them to get your grandon's problem under control. Having such loving and caring family around him will be a real blessing for him.

I'm thinking of you linlit and am sending you lots of positive vibes to cope with everything that is going on for you, and then lots of healing vibes for your lovely grandson I hope everything improves for you very soon indeed !!

Foggy x

[linlit]

Thank you all for all your kind words and surport,

He is now on meds and back home he may grow out of it but we will just have to wait and see with fingers crossed

llin

[bluebell99 in reply to linlit]

That is good news indeed.

It has been such a traumatic time for you all and now you can catch your breath and relax.

Special hugs to the little chap.

Nancy Xx

[Mrs_Somerset]

Dear Linlit,

I am sorry to hear you are feeling down, it is so hard to stay positive sometimes - but we are here for you.

Sending you positive thoughts and virtual hugs,

M