I went to the consultant last week and they said I most proberbly had Stiff Person Syndrome and explained why I feel so ill. They would set up Physio and OT for me to help!! I looked it up on the web and do fit all the catagories. However today I get a letter stating I have not got it,and they will see me again in 6 months to see how I am getting on. I have however got Fibro ( er I knew that ) and they are going to get me to see the management team for fibro in 6 months time.
The meds they gave me for SPS are also used for fibro so I can carry on taking them......I am furious I was told 4 months ago I had to have other tests and now I dont need any doing as I just need to learn to live with this.
I cannot walk ,Swim , Drive or do anything around the house or garden . If I so much as sneeze I go into a spazm.
The Meds I am on make me feel aweful and I have a dry mouth ( to the point my speach is affected ) I really cant see the point of taking meds that make you feel worse,for an illness you dont have!!!!
I am exhasperated !!!
Now I feel worse about me than I did before the medical.