The pain has returned with a vengeance.

[emjane4465]

Hi everyone its been a few weeks. My lidocaine worked wonders ! It was fantastic but the reality is the hospital cannot keep 4 weeks between my infusion and injections its 10 weeks. My pain is getting worse day by day. My hands are now painful which I have no had before the finger joints are agony and I am left unable to straighten my fingers.

I have rung my gp to give me my old medications for 3 weeks but he has not rung me back. So I am left in agony. Why won't GPs help??? My left knee is swelling up with fluid and has shooting pains pins and needles and numbness. He said I will send you for an xray which they do every year. I haven't even gone for the xray! It never shows anything up.

I have a severe form. I'm 20 and I am worrying already how long I should wait for children if I am in this much pain now ! At present I am not in a good place. But I am still working and driving. I am losing concentration at work aswell.

[Hidden]

I can sympathise with you here ... I have 3 monthly trigger point injections they work wonders I was due them again beginning of April... But then both consultants were off so phoned yesterday to ask and told the back log is so big it could be June or July before I get more... I am going to GPS on Thursday to ask for some pain relief.

So sorry for you

VG x

[hamble99b]

wat reason do they give for having to wait 10 weeks?

ask for an app't tomorrow and say it's an emergency - you are in pain , treatment is overdue.

if you get no help from the gp , call the consultant's secretary, she might help.

or go to a&e and explain the delay's effect.

I would go for the x-ray, it helps monitor your condition.

ask too about physio and wax baths for your hands - bliss!

sandra.

[justlilme]

i am 25 and age wise and pain wise i understand. i am deeply sorry to hear your pain i have sereve pains in hands and feet turned out to be arthis on top of fibro i am on naproxem for that and morphine slow release gabapentin anti sickness propanol fluxetine diazepam and morphine solution for fibro and still am up now its nearly 1 am hands killing hilst trying to type. as for children i have put it off put it off am scared i have one and due to my aliments cannot look after the baby properly my hubby works fulltime and cares 4 me i cant ask more of him, so i understand your worries bless you. my name is kerry and you are welcome to private message me anytime ill get back to u asap.

i cant believe gps are not pulling their weight all i can suggest is pester til they give in to helping u sounds silly i know. we are both young which i find hard to deal with i dont know if ufeel the same thoughts bout future and etc children.

hugs so gentle kerry x plz let me know how u get on.

[Ginsing]

I do think you need to emphasise how bad the pain is when you try and get an appointment. My hands are grim at moment it does help to keep putting them in warm water - OH says I have no excuse not to do washing up pha+ what does he know.

Ring your Gp make another appointment dont be side lined . xgins goodluck

[BeckiMae]

I synpathise with you. I have lignocaine infusions which are meant to be done every 2 months as was agreed with the consultant last October for what I thought was continuous treatment. My last infusion was 6th march (just before starting new pt job) great i thought the next one is going to around 6th may. Chased up the appt in April to be told not on the waiting list and have to come to clinic for review! The last time my treatment was messed up I lost my 12 year career! I was already in a lot of pain so phoned pain team for advice. The nasty cow of a nurse came on the phone and when I said infusion should be every 2 months I was told I take things said to literally, infusions done in blocks of 3 then have to be reviewed!!! no one said that at previous appt, clinic appt with Nasty cow of a nurse was 12th April which was waste of time as in for 5 mins, asked stupid questions she already knew the answer to but made me chose between the infusion or the epidural (for my slipped disc and trapped nerve) I need both I said but only allowed on waiting list one treatment at a time! How could I chose when both have a massive impact on my quality of life. Through the tears of disappointment I chose the infusion. To my horror I was put on the waiting list 2 months from the clinic date not the last infusion, so it's the 19th of june !! 15 weeks between treatment. Still trying to hold the new job, battling pain and recurrent chest infections. Beginning to wonder if there is any point trying anymore

[Lucyw]

What are these infusions?

[emjane4465]

An infusion is like a drip.

I feel so guilty I'm having to take a day off of work tomorrow pain is that bad. First time ever ! My joints are hot and swollen walking is difficult. Is this more than fibro ? I've never had hot swollen red joint nor the pain I am now experiencing it feels like having a fractured bones !!