I am Vic, a mummy of a little girl who is 4 and a little boy who is 1 and I have been diagnosed with FMS for 5 years after being wrongly diagnosed with early menopause.
I am quite a positive person so if you want positive chats then please get in touch with me as I think half the battle with this illness is PMA, it gets me a really long way !
I am on hourly morphine patches (which are amazing ) and have severe overall pain especially in my back where i have scoliosis and in the bottom of my back in the pelvis area as well as not being able to use my hands brilliantly with gripping and chronic fatigue.
In the mornings when i awake and cant move, i take a while to stretch everything out one by one, yes it hurts ALOT but i have to do it! I cant even grab my duvet to pull it off myself until this is done. I start with hands then move from head to toe. I then have to get out of bed to get the kids up and Abigail to school each day so push through the pain and walk 1.8 miles to drop her off. Its not easy and some days i have to really push myself but once I am home I feel great and ready for my day with my 1 year old. I then repeat it at 3pm to pick her up. I do it even in the rain as if i miss a day out, I struggle to move for the rest of the day and following days!
Life is limited, i cant play with my kids on the floor like i want too, i cant clean my house like i want too but its clean enough and tidy enough as my husband really helps. I would love to do so much more but i have to accept I cant which is easier said than done as I am a musician and have had to give up as a professional swing and jazz band lead trumpet which is heartbreaking.
I sleep when my baby does (which isnt long) but have to or I dont get through my day so being able to work is a no no as no one will hire me needing a nap in the day and with the random flare ups I have! THat does get me down ALOT as i am an active person and want to be as "Normal" as possible.
Anyway what i want to say is yes I have the same struggles as most but if you can get yourself into the position to work through and push through the pain then you really must. I was bed bound for 6 months so i know how bad FMS is, but i also walked up an Ice mountain Volcano in Iceland for my honeymoon to prove that I could and wasnt going to let FMS beat me and take over my life! Granted i was in bed for 2 months after but I still did it
I beg you all to please try walking, start slow and work your way up as its my saviour. Plus i lost 4 1/2 stone doing it which has really helped with my knee, ankle and feet pain problems!
Big hugs to those in agony, but please try little walks and often and i promise you it will work
I always said "yeah right" to the doctors when they said exersise helps, but it actually really does. I dont mean swimming, or boxing or cardiovascular activity as thats crazy but walking is amazing !
I really hope there are many others out there that want to be positive and havent given in to this awful illness as its so possible to get on that slippery slope. I am on it alot, but I have also learnt to pull myself back up again! I had to to be allowed to have my 2nd child and he is the best thing in the world and really glad i did it even though its really hard most of the time picking him up and being able to chase after him etc, but I have adapted to the life I need to lead with him (with bad days here and there)
Please dont reply with mad or nasty emails as i am aware people take offence to my way of thinking and I really dont want to recieve any. I have just returned to support groups after appauling responses from many Fibro suffers just because I am positive - I need support too, I too am in severe pain, I just try to live life as full as I can to stay focused and happy! It could be so much worse x !