Posts - Living with Fatty Liver and NASH | HealthUnlocked

Living with Fatty Liver and NASH

8,141 members • 2,085 posts

All posts for May 2018

hol

Ok before I move to Ohio they have a Whole Foods Market there. The question is I believe The Paleo Diet must am also best. But I also hear a lot about the Keto...

Ok before I move to Ohio they have a Whole Foods Market there. The question is I...

utep99

•6 years ago

2 Replies

hol

Ok before I move to Ohio they have a Whole Foods Market there. The question is I believe The Paleo Diet must am also best. But I also hear a lot about the Keto...

Ok before I move to Ohio they have a Whole Foods Market there. The question is I...

utep99

•6 years ago

1 Reply

I have NASH from life long eating disorder/food issues/solutions

I am so glad to find others who need support like me. It's tiring to try to tell family about your symptoms and because you aren't bleeding or unconscious...

I am so glad to find others who need support like me. It's tiring to try to tell...

Kitkatnash

•6 years ago

7 Replies

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Appreciating small successes, a BM before a shower, what makes your day?

As you get older and deal with health issues, it is interesting how the things that make your day change. I would never have predicted that having a BM before...

As you get older and deal with health issues, it is interesting how the things t...

nash2

Partner•6 years ago

5 Replies

Ignored, very sick

Since my last GI told me high enzimesenlarged liver, 6 weeks after scan denial, still haven't heard back from m him GHOST, his last words you have horrible...

Since my last GI told me high enzimesenlarged liver, 6 weeks after scan denial, ...

TraceyAlbinson

•6 years ago

4 Replies

Collagen and fibrosis, do you know how that works?

Remember from prior posts, that fibrosis forms first as long strings that associate over time and are eventually arranged into a very stable triple helix that...

Remember from prior posts, that fibrosis forms first as long strings that associ...

nash2

Partner•6 years ago

11 Replies

Progress on the screening project, how to make healthy food taste better, you won't succeed if it does not

I was in Houston working on the project Wednesday. A critical step is what to do after the scan to help people. People who are shown to have advancing fibrosis...

I was in Houston working on the project Wednesday. A critical step is what to do...

nash2

Partner•6 years ago

Be the first to reply

Nash with fibrosis

Hi Hope you are all as well as can be expected. I was diagnosed with Nash in November 2016. Ive also got fibromyalgia , IBS, diverticulitis, gastritis, under...

Hi Hope you are all as well as can be expected. I was diagnosed with Nash in Nov...

Hidden

•6 years ago

7 Replies

Help!

Fatty Liver Fat body Fibro High bp Husband has huntingtons and in nursing home Daughter is Huntington positive Youngest is 1 of 6 with her issue I know God...

Fatty Liver Fat body Fibro High bp Husband has huntingtons and in nursing home D...

Doe42562

•6 years ago

4 Replies

Bruise??

Seen the Dr on Wednesday this past week. Labs drawn and examined for size. Labs came back great, within normal range. Haven't heard that in months. But Friday...

Seen the Dr on Wednesday this past week. Labs drawn and examined for size. Labs ...

Mary505

•6 years ago

1 Reply

To biopsy or not biopsy that is the question.

Almost feel guilty saying this but it really has been a good week. no aches and pains. Have slept well and preparing to move to Ohio (get closer to Cleveland...

Almost feel guilty saying this but it really has been a good week. no aches and ...

utep99

•6 years ago

3 Replies

When you were first diagnosed with fatty liver, what was your doctor's initial advice?

My sister died of cirrhosis. For years she joked that she had a fatty liver. When we asked her what that meant she said the doctor just said she was fat and...

My sister died of cirrhosis. For years she joked that she had a fatty liver. W...

nash2

Partner•6 years ago

39 Replies

Hemangio Endothelioma of the Liver - Treatments

Hemangio Endothelioma

NoMoreSun

•6 years ago

1 Reply

There are no treatments for cirrhosis but transplant and not nearly enough livers for that, as patients what should we do about that?

This very short video highlights our challenge. I was wondering if you might have suggestions on how we can save more lives. Selfish question on my part as I...

This very short video highlights our challenge. I was wondering if you might ha...

nash2

Partner•6 years ago

5 Replies

Do you want some education about NASH? Watch these videos

Here you will learn more about the vital role of the liver in the body, as well as about NASH, or non-alcoholic steatohepatitis. In the second part of this...

Here you will learn more about the vital role of the liver in the body, as well ...

nash2

Partner•6 years ago

Be the first to reply

Would you consider being in a clinical trial? Are you aware that without trials there is no hope of getting any treatment for NASH?

Why should any of us volunteer to do an educational video or be an advocate about liver disease? Simple really. Most of us won't get a transplant and so unless...

Why should any of us volunteer to do an educational video or be an advocate abou...

nash2

Partner•6 years ago

27 Replies

NASH Summit in Boston, we presented a poster at the conference about our screening project with Health Unlocked. It was well received.

Here is a link to the conference. We were the only patient advocates there. Lots of research being done and we will get therapies one day. The trick for us...

Here is a link to the conference. We were the only patient advocates there. Lo...

nash2

Partner•6 years ago

Be the first to reply

Berberine

Has anyone on here had any results with the supplement Berberine? I found a study that suggested that it could help with NAFLD/NASH....

Has anyone on here had any results with the supplement Berberine? I found a stu...

hearae

•6 years ago

2 Replies

Are you willing to tell your story to help others cope with disease or in a best case help those not yet ill decide that they don't want it?

If you could help save a life would you? If it might be yours would that matter? I've been asked, by a couple of big firms, to build a list of patients and...

If you could help save a life would you? If it might be yours would that matter?...

nash2

Partner•6 years ago

2 Replies

NASH stage 2

I have been so sick. Nausea, dizzy, no appetite, can drink enough really bad stomach cramps. . I've been running a fever fir3 days of 101+. I was diagnosed in...

I have been so sick. Nausea, dizzy, no appetite, can drink enough really bad sto...

Mary505

•6 years ago

13 Replies

Did you ever wonder how we think about this disease from a societal perspective or how we speak to drug companies? Here is a slice of that.

We are all faced with very large challenges. We approach a common problem, that of liver disease, from very different directions but our shared goal is better...

We are all faced with very large challenges. We approach a common problem, that ...

nash2

Partner•6 years ago

1 Reply

First time blood liver enzymes since 2017 have risen within one year! 11 to 130. What should I do?

First time getting a blood test results my ast 130 and alt 47 my alk is low 42. Cholesterol levels are high. I had a long winter here in Wisconsin spent a...

First time getting a blood test results my ast 130 and alt 47 my alk is low 42. ...

JulianneAngel

•6 years ago

5 Replies

What kind of fool would start a nonprofit foundation?

Several people have asked me why I go to all the trouble of creating a foundation so I thought I would comment. I am old enough not to be trying to get rich....

Several people have asked me why I go to all the trouble of creating a foundatio...

nash2

Partner•6 years ago

3 Replies

Screening project update

I'm in Houston today working on the pilot project for our liver fibrosis screening project. Reception has been excellent. Lots of more work to do to spread the...

I'm in Houston today working on the pilot project for our liver fibrosis screeni...

nash2

Partner•6 years ago

Be the first to reply

Need some more advice

So I've posted before I've been told that I have a fatty liver but nothing has ever been done. Now I have high copper and high ceruloplasmin and I just talked...

So I've posted before I've been told that I have a fatty liver but nothing has e...

Hidden

•6 years ago

2 Replies

Coping

I was diagnosed with NASH almost 3 years ago from 15 years of undiagnosed diabetes. I was fairly sure I was gonna die, and most of the time felt as if that...

I was diagnosed with NASH almost 3 years ago from 15 years of undiagnosed diabet...

BU2B

•6 years ago

1 Reply

KETO and fatty liver

Wondering...will a KETO diet help combat a fatty liver?

Deb1957

•6 years ago

3 Replies

fatty liver.

I started using safflower oil and 6 mths after I was diagnosed with fatty liver.I stop using the safflower tablets. I repeated the blood test 3 times and it is...

I started using safflower oil and 6 mths after I was diagnosed with fatty liver....

Sndrlm

•6 years ago

1 Reply

Posts - Living with Fatty Liver and NASH | HealthUnlocked

Living with Fatty Liver and NASH

All posts for May 2018

hol

hol

I have NASH from life long eating disorder/food issues/solutions

Appreciating small successes, a BM before a shower, what makes your day?

Ignored, very sick

Collagen and fibrosis, do you know how that works?

Progress on the screening project, how to make healthy food taste better, you won't succeed if it does not

Nash with fibrosis

Help!

Bruise??

To biopsy or not biopsy that is the question.

When you were first diagnosed with fatty liver, what was your doctor's initial advice?

Hemangio Endothelioma of the Liver - Treatments

There are no treatments for cirrhosis but transplant and not nearly enough livers for that, as patients what should we do about that?

Do you want some education about NASH? Watch these videos

Would you consider being in a clinical trial? Are you aware that without trials there is no hope of getting any treatment for NASH?

NASH Summit in Boston, we presented a poster at the conference about our screening project with Health Unlocked. It was well received.

Berberine

Are you willing to tell your story to help others cope with disease or in a best case help those not yet ill decide that they don't want it?

NASH stage 2

Did you ever wonder how we think about this disease from a societal perspective or how we speak to drug companies? Here is a slice of that.

First time blood liver enzymes since 2017 have risen within one year! 11 to 130. What should I do?

What kind of fool would start a nonprofit foundation?

Screening project update

Need some more advice

Coping

KETO and fatty liver

fatty liver.

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