Posts - Living with Fatty Liver and NASH | HealthUnlocked

Living with Fatty Liver and NASH

8,338 members•2,185 posts

All posts for March 2018

Did you know that liver disease can steal your mind? If you have had an HE episode, do you have advice for others not yet there?

When the liver is damaged enough that it can no longer do its job of removing toxins from your blood the blood gets dirty. The circulating poisons can affect...

When the liver is damaged enough that it can no longer do its job of removing to...

nash2

Partner•7 years ago

8 Replies

Why can't a liver be more like a breast ???

When I think about screening for liver disease I often find that tune from My Fair Lady, "Why Can't A Woman Be More Like A Man" running through my mind. It is...

When I think about screening for liver disease I often find that tune from My Fa...

nash2

Partner•7 years ago

1 Reply

Were you surprised by how advanced your liver disease was at diagnosis?

Would it surprise you to learn it is the standard practice to wait until you are ill to worry about liver disease? EXCERPTS FROM THE AASLD PRACTICE GUIDELINES...

Would it surprise you to learn it is the standard practice to wait until you are...

nash2

Partner•7 years ago

3 Replies

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What is NAFLD, should I be scared?

There are a lot of mixed messages about fatty liver and NAFLD. If you are interested in understanding the problem broadly here is an article that may help...

There are a lot of mixed messages about fatty liver and NAFLD. If you are inter...

nash2

Partner•7 years ago

1 Reply

Getting on the move

I currently reside in far west Texas (not a great place to be) The Veterans Administration have no clue what to do so after 2 years of lets monitor it I...

I currently reside in far west Texas (not a great place to be) The Veterans Admi...

utep99

•7 years ago

2 Replies

Introduction

Hello there. Introducing myself. My name is Elizabeth and I've several conditions with one being NASH with S1 fibrosis and 90% severe hepatic Steatosis. I also...

Hello there. Introducing myself. My name is Elizabeth and I've several condition...

Sosieslove

•7 years ago

4 Replies

FATTY LIVER

Hi there. I have been diagnosed with fatty liver yesterday. Since 20 days, I have been having extreme fatigue and muscle weakness and I am unable to eat food...

Hi there. I have been diagnosed with fatty liver yesterday. Since 20 days, I hav...

Rammm

•7 years ago

3 Replies

Fatty liver and advanced liver fibrosis. I am 28 years old, Female. Non Alcoholic.

Last month I did Fibroscan in Thailand and the results were like liver stiffness 11.1kpa (advanced liver fibrosis- F3) and fat in liver is 327db/m (S3). Dr....

Last month I did Fibroscan in Thailand and the results were like liver stiffness...

Mubarrat

•7 years ago

5 Replies

As 2018 is flying by - how do we find liver disease before it becomes cirrhosis and threatens to kill us? Can we? Should we? Your thoughts?

If you think about the co-morbidity illustrated in this image, it is clear that there are at least 40 million Americans who are at some level of risk for...

If you think about the co-morbidity illustrated in this image, it is clear that ...

nash2

Partner•7 years ago

Be the first to reply

Guessing Game /liver /pancreas

Told high liver enzymes/enlarged/fatty ,loose weight !/enlarged abdominal lymph nodes lesion on kidney /end up Er Bleeding (hysterectomy 14yrs ago ,clots,blood...

Told high liver enzymes/enlarged/fatty ,loose weight !/enlarged abdominal lymph ...

TraceyAlbinson

•7 years ago

1 Reply

I was almost misdiagnosed to death

Here is a link to a story by a very brave woman whose life would likely have taken a very different turn had she been managed better by the medical staff who...

Here is a link to a story by a very brave woman whose life would likely have tak...

nash2

Partner•7 years ago

Be the first to reply

Did your doctors have difficulty diagnosing your disease?

A large survey of medical professionals asked them about how the profession was doing in its diagnosis and management of liver disease. It might surprise you...

A large survey of medical professionals asked them about how the profession was ...

nash2

Partner•7 years ago

8 Replies

The TRUTH About NASH, an Intercept Pharmaceuticals roundtable we participated in discussing the challenges of liver disease

Patients, physicians, and others with a stake in nonalcoholic steatohepatitis (NASH) – a chronic condition caused by the buildup of fat and inflammation in...

Patients, physicians, and others with a stake in nonalcoholic steatohepatitis ...

nash2

Partner•7 years ago

4 Replies

Can you tell when they don't care if you die?

The Foundation is patient focused on fatty liver and NASH leading to cirrhosis which is just one of many liver diseases. The American Liver Foundation covers...

The Foundation is patient focused on fatty liver and NASH leading to cirrhosis w...

nash2

Partner•7 years ago

4 Replies

NAFLD doesn't end with a Liver Transplant

In this study, 26% of liver-transplanted patients had new-onset NAFLD! "This is not dissimilar to the 22% prevalence seen among the general population." So...

In this study, 26% of liver-transplanted patients had new-onset NAFLD! "This i...

Transplant911

Moderator•7 years ago

1 Reply

Scare for my liver. I am 23 Years old

Hi guys in december i decided to take a health screening with my family and all blood works were fine except for my liver pannel where alt is 61 and ast 32....

Hi guys in december i decided to take a health screening with my family and all ...

Iamczcz

•7 years ago

4 Replies

Need help

I was diagnosed with non-alcoholic fatty liver about 2 1/2 yrs ago. I have not been to a doctor in 1 1\\2 yrs . The last time I saw a doctor he said all my...

I was diagnosed with non-alcoholic fatty liver about 2 1/2 yrs ago. I have no...

jay02

•7 years ago

5 Replies

Liver disease, the common killer no one knows about, what do we do to fix that?

We are never going to get the support we need if no one knows about these diseases. We all know about regular blood pressure, diabetes, mammographies, and...

We are never going to get the support we need if no one knows about these diseas...

nash2

Partner•7 years ago

1 Reply

Rant

Hey I'm 27. Never drink but I have lost 30 pounds and recently I got hit with overwhelming fatigue. My ultrasound shows enlarged spleen and enlarged liver....

Hey I'm 27. Never drink but I have lost 30 pounds and recently I got hit with ov...

Frogking

•7 years ago

56 Replies

Fatty liver

Hey I was diagnosed with fld 2 months back have lost 7 kgs and changed diet my blooad tests are normal again except my total bil which is 1.2 mg/dl . did I...

Hey I was diagnosed with fld 2 months back have lost 7 kgs and changed diet my b...

Pradsy111

•7 years ago

17 Replies

Stephen Silva, a story of a hopeful future. He refused to go silently into that dark night. An example for younger patients especially.

I was diagnosed with stage 4 alcoholic cirrhosis of the liver in May 2016 at age 32. At the time I was deep in alcoholism and weighed over 300 pounds. I had...

I was diagnosed with stage 4 alcoholic cirrhosis of the liver in May 2016 at ag...

nash2

Partner•7 years ago

8 Replies

How can you eat correctly when you don't know how digestion works? Everything goes through the liver, right? Suppose it isn't that simple.

There are "experts" who argue for all of the many types of diet. The low carb vs high carb or low fat vs high fat supporters all argue for their views. How...

There are "experts" who argue for all of the many types of diet. The low carb v...

nash2

Partner•7 years ago

9 Replies

Lessons from the liver road. TJ O'Rourke is a multi decade traveler of liver disease and he offers perspective to patients and caregivers.

There are some things I would like to say. Things I realized over a long period of time. Your mileage may vary, but I bet some things will ring familiar. I...

There are some things I would like to say. Things I realized over a long period ...

nash2

Partner•7 years ago

8 Replies

I'm surprised that no one has any issues with the way liver patients are treated. I didn't think I was the only one.

A few days ago I asked for help putting a list of things that are wrong with how liver patients are treated. I have the opportunity to meet with Congress in a...

A few days ago I asked for help putting a list of things that are wrong with how...

nash2

Partner•7 years ago

26 Replies

Considering a transplant? Better call Mariel

https://m.facebook.com/story.php?story_fbid=813825752134637&id=236086973241854

nash2

Partner•7 years ago

Be the first to reply

Posts - Living with Fatty Liver and NASH | HealthUnlocked

Living with Fatty Liver and NASH

All posts for March 2018

Did you know that liver disease can steal your mind? If you have had an HE episode, do you have advice for others not yet there?

Why can't a liver be more like a breast ???

Were you surprised by how advanced your liver disease was at diagnosis?

What is NAFLD, should I be scared?

Getting on the move

Introduction

FATTY LIVER

Fatty liver and advanced liver fibrosis. I am 28 years old, Female. Non Alcoholic.

As 2018 is flying by - how do we find liver disease before it becomes cirrhosis and threatens to kill us? Can we? Should we? Your thoughts?

Guessing Game /liver /pancreas

I was almost misdiagnosed to death

Did your doctors have difficulty diagnosing your disease?

The TRUTH About NASH, an Intercept Pharmaceuticals roundtable we participated in discussing the challenges of liver disease

Can you tell when they don't care if you die?

NAFLD doesn't end with a Liver Transplant

Scare for my liver. I am 23 Years old

Need help

Liver disease, the common killer no one knows about, what do we do to fix that?

Rant

Fatty liver

Stephen Silva, a story of a hopeful future. He refused to go silently into that dark night. An example for younger patients especially.

How can you eat correctly when you don't know how digestion works? Everything goes through the liver, right? Suppose it isn't that simple.

Lessons from the liver road. TJ O'Rourke is a multi decade traveler of liver disease and he offers perspective to patients and caregivers.

I'm surprised that no one has any issues with the way liver patients are treated. I didn't think I was the only one.

Considering a transplant? Better call Mariel

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