I have been suffering for more years than i care to remember with bowel problems alongside the pelvic and abdominal pain i get with endo. in line with my monthly cycle i get very bad diarhea, but at the same time i get a lot of swelling. i have the swelling throughout the month but its worse in the days before my period. i have had a previous HALO procedure for piles but this didnt help, and caused large scale internal bleeding with no explanation. i ended up bleeding for three days (from the bowel) non stop before i had two emergency blood transfusions and was rushed back into theatre. to this day they dont know what happened but ever since then i get the upset tummy every month and the swelling was even before this. i am convinced that whilst i may well have piles that there is something endo related. particularly as there was so much unexplained bleeding. i also have bloody mucus in the stools before my monthlies (sorry for the TMI) and yet the GP wont refer me for more investigation, and the gynae palmed me off to the pain management clinic a year ago after my second lap, claiming there is nothing more to investigate and nothing more he can do. i am regularly in my GP complaining about bowel related symptoms as well as the pelvic pain which has been gettng worse again for the past year after my last lap. it feels like they have given up on me and my GP just says i should live with it and learn to manage the pain. this cant be the only option? i have the coil for my endo but other than that they seem to be unwilling to offer any alternatives. i also have problems with my bladder which started around the time i got my other endo problems. i bloat easily and feel pressure on my bladder even when its not full, to the point where it wakes me in the night without fail. it also hurts after i go to the toilet. i dont feel at all happy that i can live like this but i keep getting told there is nothing more that they can do for me. they tried amitriptaline for the pain and the pudenal nerve injection but neither worked and the amitriptaline had terrible side effects. im going for counselling next week . i feel like for the past 10 years ive been telling them something is badly wrong and its only 3 years ago i was diagnosed, and now even with the diagnosis it seems that they feel there is nothing they can do....does anyone else have similar symptoms and think it might still be endo? or can anyone recommend a test to have without having another lap to see if its endo or cysts? i just dont know which way to turn at the moment. its so hard to cope with work and relationship when you dont feel that it will ever get better. even a possibility would lift my spirits. a test they could run or some course of alternative action to try. i wont accept that im a lost cause. and no its not normal to bleed from your bowel every month and have such bad upset tummy that you re afraid to leave he house. once when i was out the urge to go and the pain was so strong i collapsed, and it was all black and totally liquid, but the GP just said oh its a tummy infection, gastroenteritis...i get this diagnosis several times a year. but this cant be so... sorry for the rant and graphic detail. please help.
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