After a short period away from this page, I'm back as I feel I have no where else to turn.
So briefly my story is - I've been back and forward to GP and seen a consultant in the hospital and they said they think i have endo (no lap done as they wanted to try the coil first) so try the coil, I tried the mirena coil and lasted 11 months with it, my periods got progressively worse on it, i turned into a greasy haired teenager and developed acne. It was obvious to say it wasn't agreeing with me. I also hated not being able to control when I bled as I always tried to time it for the weekend. Anyhoo I've had it out now a good few month and back on the pill Millente and taking it back to back and have a break at 3 months. My doctor suggest i take it until my body bleeds itself, has anyone ever done this? i just feel like i get to the end of my 3rd pack and I NEED a bleed.
My symptoms are the worst they've ever been and now I feel they affect me even when i'm not bleeding. I was diagnosed as having IBS when i was 17, i know what affects my tummy and what foods to avoid now, i've been coping with it for 13 years but over the last 3 months my tummy has been a nightmare. On quite a few occasions where i wasn't bleeding i've had blood in my poo, i'm constantly having diarrhea or loose bowel movements and the pain is horrific. I've also been suffering mucus wise as well. I think its related to endo but does anyone else have the same?
So this year I've been back and forward to my GP and she said we've tried everything and has referred me back to the hospital, i have my appointment on 31st Oct, how do i state that i want a lap? and for them to take me seriously.
My heart goes out to you. So sorry to hear of all your suffering and what you are now going through.
I am busy for an hour or two but will get back to you soon.
Meanwhile, have you ever tried the Endometriosis UK helpline? It is only open from 11am to 1pm today if you are able to call now :
0808 808 2227
Have you or your GP considered IBD as well as IBS? Do you think you may have symptoms of Colitis or Crohn's? Their helpline number is:
0300 222 5700
Have you ever had blood tests to check your Thyroid gland function?
Have you had a recent gastric bug or food poisoning? Has GP tested a stool sample yet?
Any constipation recently or straining at stool?
I am not medically qualified but have had numerous similar symptoms with bowels.
There is also a Bladder & Bowel helpline number I will post when I get back to you.
. . . . . . Continued
Meant to ask if your appointment on 31 October is with Colorectal Consultant or Gynaecologist?
Change in bowel habits and blood in stool (in particular) justifies URGENT referal to Colorectal Specialist. You should be seen quickly for this. So if 31st appointment is with Gynae. then get straight back to GP re blood in stools and change in bowel movements.
Have you ever been told that you have Diverticular in your bowels? Ever had Barium Enema investigation? Any possibility of Diverticulitis?
Thank you for your response. I definately dont think its Diverticulitis, I've had that once when I was young and I remember the pain from that.
Yeah my appointment is with a gynecologist but I know that Newcastle RVI does have a endo specialist. I was going to wait until my appointment on 31st and see what they suggest to do with my tummy.
In regards to tummy it wasn't piles as i haven't been straining or anything. When i was diagnosed with ibs i had 2 colonoscopies and they couldn't find anything so said it was ibs never had the barium enema though. I was diagnosed 13 years ago though so things can change.
Thank you for the helpline numbers though i didn't even know there were helplines.
Have you been having the loose bowel movements for 3 months and the blood in poo intermittently over the past 3 months?
What does your GP mean by 'we've tried everything' she should know that blood in poo requires urge to Colorectal referal.