I have been suffering with endometriosis for 17 years since I was 22. I had never suffered with painful periods or pms since starting my periods at 12 so to start suffering it came as quite a shock.
It took them 6 years to diagnose the endometriosis and during that time they kept saying it was P.I.D. I even had my appendics removed as they thought that was the problem. Since being diagnosed in 2001 I have had 3 laporoscopies, laser treatment to remove the adhesions (grade 4). I have tried hormone tablets, prostap injections twice, different pills and the contraceptive injection and have tried accupuncture twice. I am now following the endometriosis diet to see if that can offer some help. I have always had it thrown in my face that because I haven't had children there is nothing that can be done for me, which I don't believe. I was in an abusive marriage so having children was not an option and now I live with a wonderful man who unfortunately made the decision not to have anymore children 12 years ago so he had a vasectomy.
I had the mirena coil fitted in the summer of last year 18 months after the laser surgery and my suffering continued. The coil came out on its own just before christmas and I suffered with a bad pelvic infection as well as the endometriosis. After completing my second course of prostap the pain come back almost immediately and I keep getting spotting on average twice a week but have not yet had a proper period.
Recently I collapsed in pain and was rushed into A&E where they thought I had a cyst that had ruptured. I had a pelvic scan & vaginal scan and they couldn't find my organs due to the endometriosis. I went through the pain of a hysteroscopy and everything was OK. I am now living on ibruprofen and co-codamol so my life is on hold. I can just about manage to go to work but other than that I have no life as I don't have the energy to do anything else.
I am due back at the hospital next week to see my consultant and am now pushing for a complete hysterectomy as I feel that this is the only way forward.
I will keep you all updated on how it goes with the consultant but would love to hear from anyone that has had a hysterectomy and if it has made any difference to there lives.