I have only recently joined this site as I am at my wits' end. I hope you don't mind me sharing but I am so scared about the diagnosis and I feel completely alone.
I've had abdominal pain since I was 18. After removal of appendix and three laparoscopies they finally found the endometriosis two years ago. This was only because my gynae consultant managed to figure out what it was and knew what he was looking for. I've also got endometritis which I believe is inflammation? I had the mirena coil fitted and was prescribed a course of Zolandex for six months. Everything after that was fantastic and in my check up he said that he didn't forsee any problems with fertility.
However, three months after the Zolandex stopped my periods returned and were heavy and regular. And with the periods came the pain that got worse every month. For the last two months the pain was indescribable but my periods had been reduced to spotting. I was hospitalised a month ago. They couldn't find any cysts but found endometriosis again. I was also suffering with an impacted colon because the pain killers had had an adverse affect. I'm back on the Zolandex now but this time it isn't working. My gynae consultant has said that there is one more drug he can try and then he is out of ideas. Not only that, but I cannot take opiates now so I am forced to cope with strong anti-inflammatories and paracetamol. The pain is indescribable and I cant work.
There has been talk of a hysterectomy but I'm only 27 and desperate for a family. Does anyone else have a similar situation? My consultant says that I can only stay on Zolandex for six months and if that doesn't work then he doesn't know what else to suggest.
All I wanted to know was a) do you have any pain relieving tips that might help me? b) is there anyone who has a similar situation and can offer any advice?
Thank you for listening