I've just been diagnosed with stage 1 endo after a laproscopy. I also have IBS and a scarred kidney which is partially functional. This all contributes to my daily pain and sickness. The problem I have is that the Urologists blame the Gynaecologists and the Gynaecologists have said they will not treat me until it gets worse. I also have Borderline Personality Disorder and both Uro's and Gyny say I need to undergo psychotherapy. In lament speak 'it's all in my head'. I'm sat on a waiting list for psychotherapy (even though I've been in and out of counselling since the age of 11) which could be years. So right now I'm left in limbo. I'm 25 years old and I've had this pain for 10 years. It's gradually getting worse to the point where I'm immobile. I'm on a lot of pain relief including morphine and gabapentin. I feel like my life is over. I really want to get back into work but I had to give up working and university because I'm unwell. I'm sick of being on ESA with the relentless hounding and 'assessments'. Stress makes my pain worse (high blood pressure affects my scarred kidney) and I really just can't go on living like this. I used to be so active and I want some form of life back. Any suggestions as to where I can go NHS wise? I have a very understanding GP but he doesn't know me very well as my last GP left the surgery. Is there anything specific I should be asking? The treatment for my endo currently stands at taking the combined pill for 3 months then off for a week then back on it for 3 months etc. Currently in my 4th/5th month and feel worse for it. I'd really appreciate some advice. No-one I know has endo and I really have no one to talk to about it.
Thank you for taking the time to read this!! xXx