Hi everyone. I was after your advice. I have suffered symptoms for over 5 years now. These are: heavy periods which are regular 28 days lasting 7 days, flooding, large blood clots, severe abdo pains (like labour pains) which go down thighs, ocassional rectal bleeding following motion, painful sex. I have 2 children ages 9 & 7. I used to take contraceptive pill before having kids but was taken off due to suspected blood clot in lungs. had scan june last year which showed uterus tilted and small fibroids. gp put me on tanexamic acid which reduced blood loss but not helped pain. was then given mefanamic acid but had a reaction to this so I had another scan dec last year which showed large 2" blood filled cyst on right ovary and was referred to gynae. in aug gynae registrar examined me and said I had stage 4 endo along with endometrioma. they decided I had to have a lap to remove cyst and possibly tube and ovary if necessary. they said they would also take biopsy to test for cancer and would laser any endo they felt they could remove. had lap 2 weeks ago to find there was no cyst, fibroids or endo. I didnt get to speak to surgeon after op so I managed to arrange a follow up myself which I went on monday. the procedure ended up being a laparotomy and an unplanned hernia repair (because they failed to read my history of umbilical hernia when was a child). other than this nothing else has been done not even biopsies. so I am back to square one. they have suggested a mirena even though the first registrar said cant have with fibroid history. just dont know what to do now. maybe I have to just accept this is how things have to be. is hard when it affects my family and work too. have had months of worry and although was scared of diagnosis at least it was an answer. what would you suggest?
Last edited by dawntildusk
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