Morning all,I have DIE and had surgery in 2016 to diagnose it. It was starting to go into my bowel and was wrapped around my appendix etc. I'm on the waiting list for hysterectomy/oophorectomy and endo excision ( over a year wait).
I'm struggling and I'd really appreciate your opinion. I've had X4 lots of antibiotics for a UTI. Last two urine cultures were negative mind. It felt like awful cystitis but with discomfort in cervix and vagina which they've now put down to vaginal atrophy. I've had 5 months of Decapeptyl injections and managed ok. Consultant didn't want me to have any hormones for first 3-4 months. Whilst on antibiotics I've started on Tibolone and vaginal estrogen cream.
I don't know what's causing what. My cervix feels swollen and sore. Mri has shown thickening in recto-vaginal septum and I don't know if the estrogen cream is making it worse. I have an urge to wee most of the time. I've even looked into hypertonic pelvic floor i.e. not being able to lengthen the pelvic floor muscles? If contributing to urge feelings. My bladder feels like it's going into spasm after I've had a wee.
I'm all for coming off injections and HRT and having very strong pain killers instead but know how poorly I felt before starting Decapeptyl.
Should I be on estrogen cream?
Will Tibolone trigger endo if I'm on injections?
I've been off work for two weeks because of the symptoms. They're a bit more manageable so back to work on Monday!
So grateful for this group x