Hi All
I'm new here Although I've been using this website since being diagnosed for information purposes, this is my first post.
I'm just looking for some advice really.
I had my womb taken away 8 years ago (when I was 30 - now 38) due to cancerous cells and then 2 years ago I started with pain in my pelvis. That was the start of my story, which is almost identical to most stories on here........months of trying to convince the doctor it wasn't in my mind or my IBS, months of waiting for a laparoscopy, it getting cancelled and waiting again. I've had two laparoscopies now and my right ovary has been removed. The pain is still there and gradually getting worse again. I saw my Gyny last month and asked for a total hysterectomy. My surgeon has doubts it will work as I have already trialled Decapeptyl and didn't see much difference in the pain although it did help slightly.
In short, I feel like I'm out of options. I wanted to take a chance and have a hysterectomy, inducing a surgical menopause, but now the more I read, the more confused I am on whether I'm doing the right thing and if it will cause more problems than it helps.
Is there some ladies out there who have had a total hysterectomy due to Endo and taken HRT after? Did it work or make things worse? If Endo does come back after the hysterectomy, can you have more laparoscopies or do you just have to live with it?
Sorry for all the questions but I am really scared that I'm going to have the surgery and either go on HRT and get the Endo back, or not have the HRT and suffer with all manner of menopausal problems.
Any advice or similar stories would be helpful
thank you
Mandie