I am 18 eyars old and have been suffering with symptoms for almost 2 years. When I am on my period/ just coming up to my period, I am in constant pain, have really heavy bleeding, clots, pelvic pain, back pain, severe abdominal pain, sickness, dizziness and I find it incredibly hard to do day-to-day things, even walking or going to the toilet (I have bowel pain esp during periods)... I also have bleeding & spotting, and lots of pain inbetween periods, and during sex (which is taking a toll on my relationship. It's too painful to even have sex at all at the moment. Luckily my boyfriend is very understanding, but I want to be able to show him that affection).
As a result, I miss school regularly, 1-3 times a week at least, at the moment, or sometimes I miss mornings, or have to go home early because of the pain. I also find it hard to even walk to school in the first place, and I have nobody to help give me lifts.
I was on the pill Microgynon, which still gives you a monthly bleed. I had been on it for 3 years before the pain and irregular and heavy bleeding started, and had not had any problems until the last couple of years. I have been prescribed a new pill (Cerazette), which supposedly stops bleeding,
and lots of strong anti-inflamatories, painkillers etc. I have been in hospital dozens of times, but all they do is give me more painkillers, but they make me feel really sick, drowsy and dizzy. I hate the side-affects the prescribed painkillers give me, and they make me feel so sick that I can't even stand up without the room spinning. The pill seems to have made things worse. I have been taking it for almost four weeks, and every-week for up to 4 days, I bleed heavily. Which is more than I used to and making things worse. I hate it when I wake up in the middle of the night and I've bled everywhere. It's so embarrassing and scary.
I have an appointment in July (laparoscopy), but it seems like so far away and I don't know how I will cope in my exams after missing school. Also, on top of endometriosis I have abnormalities on my cervix, which could lead to cervical cancer if left un-treated. I am worried and nobody has explained this to me properly. I am having cryosurgery to remove it. I am also anemic, and the loss of so much blood and iron makes me feel weak and faint.
I am also really concerned for the future, if this carries on, how will I get a job or be able to get the qualifications I need if I can't even attend school regularly? Also, what about fertility? I want to have kids in the future, and nobody has given me any information.
My teachers aren't understanding at all, and despite talking to my parents about the severity of my problem, and doctors notes/hospital notes, they still make me feel crap and like it's my fault I'm missing school, but I really can't help it! There is nobody that I know who is going through the same thing as me, at my age.
I am really concerned for my A levels, but luckily I am taking more a levels next year to make up for it, because I feel like i'm gonna fail.
Is anyone else going through a similar problem?
This is making me really depressed and I feel helpless and hopeless all the time.
I feel like nobody is supporting me or helping me to get through this. What can I do?