I had my 3rd laparoscopy last Tuesday and as I was recovering my specialist came to see me. She said she hadn't needed to 'do anything' because there was no Endometriosis growth since my last laparoscopy 3 years ago. My response to this was "So why am I in constant pain then?" And she shrugged her shoulders and said maybe it's your bowel.
Moving forward, I suspect she's going to want to discharge me. She's already said that as my Prostap injections aren't working and as my laparoscopy has shown nothing new that "it can't be Endometriosis".
I've had a colonoscopy and my bowel is fine. The bowel doctor even admitted that where my pain was indicated that it couldn't be bowel related as my pain is too low down. I'm not buying that it's my bowel.
I know it's my Endometriosis. We know that a woman with extensive masses of endometriosis can sometimes not experience any symptoms and women with very little can live in agony. Research has taught us this! The amount we have is not indicative of the pain we are in. How can my specialist not know this?!?! She's supposed to be an endometriosis specialist.
So now I don't know what to do. I've got a doctor who I know wants to discharge me because God forbid could she admit that she doesn't know what to do with me. I'm in chronic pain and barely holding down my 15 hours a week job. I've got to gi back to work next week and try to explain that my doctor found no regrowth if endometriosis, but im still in daily pain and I'm not better. How are they going to understand that? My doctor doesn't even understand. They think, everyone thinks that this surgery was going to make me better. But I'm not better. And apparently it's not even my endometriosis.
What on earth am I going to do. I'm at my wits end. Ive been in constant pain for 4 years now and I've had enough.
Please can anyone advise me of what I should do?