Arghhhh!
Someone please help, this is all new to me.
but I had surgery booked on Thursday, for a chocolate cyst to be removed and some:if endo to be removed same time and have a coil put in. I had a MRI done and today they have cancelled my surgery, and have to go in to discuss my MRI findings - worried sick??? Has this ever happened to anyone??? Or am I over thinking ;(
try not to panic. It maybe that you need a MDT present for the surgery. It could be that the surgeon isn’t a bsge specialist and you require one as the endo may not be superficial and may need a specialist. Just try to stay as calm as possible as stress is a trigger for endo and really doesn’t help. Easier said than done I know! If you wanna scream shout or just generally let some fears or frustration out then feel free to pm me 
I hope you’re ok xx
Thank you so much - your words mean so much to me right now, had a good old cry earlier. The thing is the gynaecologist didn’t even say the MRI was a must, just good to have and that she was happy with the ultrasound as I have a chocolate cyst. Now finally mentally prepared for surgery and this happens. I will try and not stress but god, it’s so so difficult right now. Will speak to the medical secretary tomorrow morning to see if she can shed any light.
Chances are she won’t be able to explain anything as it’s a medical issue and the dr will need to explain. That was my findings while going through the process.
I had an MRI just to try rule out endo as my ultrasound showed a bulky uterus so they had to check. Best practice. Sadly it came back with adeno and endo. It maybe that you have both conditions as well so they may need to discuss other treatment options before surgery.
Yes it’s really hard not to stress - trust me I know - but your health comes first and stress is a big factor in endo and can cause a flare up and make things worse so try not to worry until it’s absolutely necessary xx
I thought so too. As they aren’t medically qualified.
What is Adeno?
Thank you for your kind words xx
It's adenomyosis, I have it unfortunately 😕
Sorry to hear that x
Thank you so very kind x
adenomyosis is the evil twin sister of endometriosis. It’s like endo but the endo grows into the muscle of the uterus. So it basically makes it larger than it should be. I think I’ve had it for quite a while as when I look back on my pregnancy when I was 29 I had signs of it then with my placenta and baby being very small
oh gosh! All these horrible things that are all so. Ew to me. Doesn’t sound nice at all. Sending lots of love and power to you x
Sorry to hear about your experience! As your post is 6 months ago, did you get to have the chocolate cyst removed by surgery in the end? By a BSGE specialist? How did it go? Hope you are feeling much better now! Your reply would be much appreciated as I also have a chocolate cyst and am considering surgery. 🙏
hey, yeah all removed now, I couldn’t get it removed from a gynaecologist, so she referred me to specialist so had to get further surgery done, also found out I had a lot of lesions also so had a long surgery done. Mirena coil in and I’m not post surgery 3 months and all good. All removed OK.
Hope that helps and feel free to IM me if you have any further questions - good luck
Contraceptive Pill ( mini pill) or surgery.
Anyone had experience of having a mri after a lap surgery and the lap surgery showed endo (no endo was removed) but mri shows no endo
Is surgery usually the only option?
laparoscopy surgery 
