Hi you lovely lot! I’m 35 and was diagnosed with endometriosis last year. It’s nice to meet you.
I had emergency surgery last year to remove an endometrioma that was discovered in hospital as I was unwell. During the laparoscopy it was found that all my pelvic organs were very inflamed and swollen with lots of fluid in the pouch of Douglas, all my organs were stuck together and had to be peeled apart, and there were many adhesions. It was felt the endometrioma had caused an infection and I was treated for pelvic inflammatory disease in hospital as well. It was hoped I’d make a full recovery, although the consultant later informed me not all the endometriosis was removed as it was not clinically appropriate at the time.
A year later, and my pain is improved (no longer constant and don’t feel like I will die!) but not resolved. I’ve been on GNHR since October and subsequently HRT after struggling with menopause side effects. I changed to patches in May and its really helped with the hot flushes - I finally felt I was turning a corner when in June I started to experience terrible intense pain in my pelvis again that comes and goes like a shock of electricity. After discussion with my new consultant, he said that I need surgery. I’m now waiting for an MRI to assess further as I understand it may now be affecting my nerves and/or bowels.
I started to feel worse again this week and for some reason, decided to dip my urine which revealed blood and leukocytes. I saw the nurse today as a precaution who has given me a course of antibiotics for a suspected UTI, however I wondered if actually they were just typical findings for women with endometriosis? Has anyone else experienced this?
Thanks! ☺️