5cm deep ovarian cyst - not sure what happens next

[DalmatianGirl]

Hey all,

Some of you might remember my post from last week where I said I felt blindsided by finding a cyst on my ovary on an ultrasound 5 weeks after my laparoscopy!

I found out later that week that it was a 5cm by 4.7cm deep cyst in my right ovary. I had a blood test done and it came back normal. My GP said she would find out if I can be referred back to my existing gynae who did my surgery or if it needs to be a new referral.

I am just wondering what happens next really? With the location and size of the cyst will I need another lap? Also I am wondering if it possible to ask to be referred to a different hospital that specialises more in endometriosis, as my consultant is more general and has obviously missed this cyst (I’d be surprised if it has grown in 5 weeks?) and also didn’t check my bowel when I did mention it and still been bleeding from my bum!

Thank you for any advice you can give.

[EndoSuckss]

Hi! I think it will depend on what kind of cyst it is regarding wheter you'll need further surgery and were you can be referred.

If it was diagnosed as an endometrioma then this is endo, so I imagine you'll be able to ask for someone with at least a specialist interest in endo, if not an expert.

If its a cyst, these can often come and go so they might opt to leave it and monitor to see if it goes on its own. There is a possibility it could have popped up within 5 weeks if it's a cyst, as a lot of these are linked to your cycle - which would be roughly 28 days-ish long.

I hope you get the answers you want soon xx

[DalmatianGirl in reply to EndoSuckss]

Thank you so much, that’s super helpful! Xx

[AMJ88]

Hi 😀 I was told by my gynae that if it was 5cm or more they would remove it. However when I had my cyst removed on the left side 20cm by 17cm there was a smaller one on the right which was just under 5cm so they left it. My last scan i had in March showed no cysts there. Pretty sure I know when it popped as I was curled up on the sofa in crying in pain. Xx

[DalmatianGirl in reply to AMJ88]

Oh my gosh that sounds horrific! Thank you for replying, i quite often get twinges of pain on that side! I guess I’ll just have to wait and see what the consultant says. I hope you’re feeling better now xx

[AMJ88 in reply to DalmatianGirl]

Just keep an eye on it and if the pain gets intense make sure you get seen. I was stubborn and wouldn't go to the hospital and by the time I finally had scans my ovary and tube had been twisted by the cyst and had to be removed. That was 2 years ago now and unfortunately the pain is back but still on the waiting list to be seen 😪 xxx

[DalmatianGirl in reply to AMJ88]

Oh my gosh that sounds absolutely awful! I hope you get seen to soon. I’ve had some pain there but just waiting to hear about the consultant referral! Xxx

[AMJ88 in reply to DalmatianGirl]

Good luck xxx

[Ronsk]

Hi there,

I've had several laps to remove endo and cysts , however they seemed to return within 2 weeks of being removed. They were mostly cyclical however there was the odd one that reached 5cm and normally when they reach that size my consultant said they need to be removed.mines were All endometriosis cysts so would fill with blood and then drain during my period..even though some were smaller than 5cm I could/can still feel the pain they cause. It's so frustrating having the procedure to remove them, being free of pain and then they return within 2 weeks..I have several on each ovary now ,but all smaller then 5cm however I still get very sharp pains with them more so if I've been sitting for a while and stand up quickly ,I feel like I'm being stabbed, kinda take my breath away and takes me a minute to stand up completely straight.

[DalmatianGirl in reply to Ronsk]

Thank you so much for replying! It is so frustrating that they come back so quick, I get the sharp pain twinges as well! I guess I’ll just have to wait and see what the consultant says, it’s so worrying though to think about needing another op! I hope you are managing your pain okay now x

[Ronsk in reply to DalmatianGirl]

I've had a few ops to remove the cyst that caused a lot of pain. They won't remove anymore because if they do my ovaries could loose a lot of function and I'm trying to conceive. I just have to take painkillers daily. It causes me a lot of anxiety as I've had them rupture before and the last time it happened the pain was like having a knife stuck up my vagina. Sometimes I get a sharp pain like that and think oh no this is it happening again but then it eases. The last time I collapsed in pain grabbing at my vagina and pelvis and could not breath. I had to get an ambulance. There was no vaginal bleeding, they just said it burst and bled into the cavity. I asked for them to remove some endo but they said no. They don't need to touch my ovaries. You mentioned bleeding from your rectum? Did this happen prior to your op? Do you get pain with it? I've got a big lumpy mass of endo between my bowel and womb which causes me pain when opening my bowels but no blood. They done a colonoscopy to rule out it breaching the lining of my colon and all was good .

[DalmatianGirl in reply to Ronsk]

You poor thing! I’ve had similar pains in my vagina but I just presumed it was from the coil they fitted during the op , like really sharp contraction pains that take your breath away! Yes I did I always bleed from there during my period and now I have been bleeding ever since my op (I think due to coil) and it always comes from there and is quite painful. I also get pain after peeing throughout my pelvis. I mentioned it to them ahead of the op but they didn’t do any bowel prep and she said they could only check the outside, then didn’t mention anything after the op, just that they had found endo throughout the pelvis and mostly on the left side! So I’m still clueless but I’m convinced I must have some endo on the bowel and bladder because I get symptoms for both!

[Ronsk in reply to DalmatianGirl]

Yes it seems you must be right. They told me to keep an eye out for rectal bleeding which would mean its breached the wall of my intestine. I just recently started having pain in my right side when passing urine. Also have an irritation in my ladder which makes me want to pee all the time, however no signs of uti. I was told a few years ago it was on my bladder so my thoughts are that it's getting worse. 😕

[DalmatianGirl in reply to Ronsk]

That sounds horrendous! I sometimes have those cystitis type flare ups, and it doesn’t ever come back as an infection. I think cystitis is definitely linked to endo. It’s just an awful condition that really takes over your body isn’t it, and it makes you miserable! I hope you get some relief soon!

[Ronsk in reply to DalmatianGirl]

I'll be speaking to the Dr on a phone consultation on Wed. I'll discuss it then with her while she does a physical examination 🤣 . Oh it certainly does take over. I've been through a hell of a lot so nothing surprises me. Almost i can do now is laugh it all off. What next eh. If i didn't I'd cry. Positive vibes lol