Sorry, this is going to be a bit of a long one, but I want to give my back story so that hopefully I can get some much needed advice.
I was diagnosed with endo at the tail end of 2015. Ever since beginning my periods at age 12 they were always excruciatingly painful and heavy.
At age 18 I started to take the contraceptive pill Mycrogynon when I became sexually active and all was fine and dandy. Then the summer of 2015 I started to get migranes. I thought this was because of my living conditions at the time - house share in London, no curtains on my windows and a dog which used to scratch on my door in the early hours, so I wasn’t sleeping. Naturally I assumed that this was the cause, but out of concern my doctor took me off of Microgynon and put me on Cerelle.
Cerelle was a disaster - constant bleeding for the 3/4 months I was on it. The doctor then decided to switch me across to Cerazette, which was even worse and how my diagnosis of endo came about. I used to get the most horrendous pain and cramps, sickness and Terrible pain and bleeding during sex. I would literally be curled up in a ball in my bed in tears when the pain would strike. I was having periods every 3/4 months, but had horrible breast tenderness when they were coming on and I came to my own conclusion that perhaps my body needs a regular bleed like Microgynon provides.
Following this, the doctor referred me to several specialists - had many scans/ swabs/ ultrasounds etc. which concluded my endo diagnosis and multi-follicular right ovary. I was then given two options - surgery to remove as much as the endometriosis as possible, or go back onto Microgynon. The doctor explained that if 10,000 women were not on the combined pill, 10 of them would naturally have a stroke within their lifetime. Then if you had 10,000 women who were on the combined pill, 11 of them would have a stroke in their lifetime. This gave me some reassurance that I wasn’t at a high risk of stroke if I went back on the Microgynon and as I said before, at that time I was convinced it wasn’t the pill which caused my migraines in the first place, as had never experienced anything like this before.
So I went back onto Microgynon on the understanding that if I started to get migranes again, I notify the doctor immediately.
All was fine until the middle of this year. I started to get the same types of migranes as I did before, and worked out that I would get at least one when I was 2 weeks into my 3 weeks of pill taking. I was due a sight test at a similar time, but they confirmed that my eyes are healthy and that my migranes weren’t being caused by needing a new perscription. So I phoned my doctor, who honestly was out of options at this time and told me to book an appointment with my local sexual health clinic as they would be able to better advise what to do.
6 weeks later (mid September) I saw the nurse at the sexual health clinic and was most concerned about my migranes and told me to stop taking Microgynon immediately. She said I was at risk of stroke, or clotting, or a bleed behind the eye. We discussed all options and she told me that my only options were either the Mirena coil, or to not use any contraceptives (apart from condoms obviously) and just deal with the pain and irregular heavy bleeding as best I could. I’m 27, so going through potentially another 20 years of pain and heavy irregular bleeding scared the hell out of me, but to be honest so did the coil.
I’ve heard horror stories of the coil, but the nurse was very thorough with her explaination and procedure and answering my questions. I figured if it doesn’t work for me, then at least I can have it removed. She then booked me in to have the coil fitted on 7th Nov.
So I had the coil fitted today, the doctor and nurse were lovely and did their best to make me as comfortable and ensure the procedure was as quick as possible, but honestly it was the worst pain I have ever experienced!! I took my pain medication prescribed 1 hour before, followed by a local anaesthetic when I got there, but it was so painful I ended up being put on gas and air. I got all clammy and my hands went into spasm from the gas and air. My doctor asked if I had any children, as the entrance to my uterus was very tight so every time she tried to insert the coil it clamped up and I’ve been having bad period style cramps all day as a result - which I know is normal. I was expecting it to be uncomfortable, but not to that extent!
Now I know it’s only day one for me, but after this experience I’ve just had so many questions that have been going through my head that I have worked myself up over it. I don’t know if it is just a knee-jerk reaction, but I am already regretting it. If I have to go through that another 3 times during my fertile years - can I really do it? If it’s that painful going in, what on earth is it like being taken out? Is it better? Is it worse? What if this doesn’t work? How long should I test the coil for? Are there any other possible options left that I can explore? Are doctors reluctant to take it out unless you say it’s because you want to start a family?
Just feels like I am between a rock and a hard place. 💔 So any advise really would be greatly appreciated.
Thanks so much for bearing with my story x