Mirena and other hormonal therapy options - Endometriosis UK

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Mirena and other hormonal therapy options

Knina profile image
8 Replies

Hi all,

What is your opinion about Mirena? I am playing with that as an option, but site effects make me scared. Also is there anyone who did not consider any hormonal therapy. My surgeon is saying if I am not going to do that my condition will just get worse and worse. I have migranes with aura, so I am left only with progesterone. Mini pill (progestin) does not work for me, danazol also.

Thank you all!

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Knina profile image
Knina
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8 Replies
Starfish123 profile image
Starfish123

I had the mirena fitted for heavy bleeding. It’s been brilliant, first two weeks were difficult, very heavy period and feeling sick but after that my bleeding settled and no more painful periods. I also stopped having UTI’s which I had repeatedly for over 10 years.

My coil was put in under a general anaesthetic and I had a few tests and biopsies done at the same time so my after effects might not just be the coil.

As for migraine, my understanding is you can have estrogen patches and they can improve migraines, I have them and I’ve temporarily had to stop them due to bleeding, my migraines have returned, didn’t have any whilst on patches. I’m presuming it’s the aura part is the reason?

I hope it helps

Sunflower-girl profile image
Sunflower-girl in reply to Starfish123

Hi, how were you able to get your coil put in under GA? I'm wondering if I can also have this one when I get my lap?

Starfish123 profile image
Starfish123 in reply to Sunflower-girl

I was booked in for tests and biopsies for the bleeding and it was put in at the same time.

Sunflower-girl profile image
Sunflower-girl in reply to Starfish123

That's really good to know. As I will be getting tests and biopsies too I will see if I can make the same request. Many thanks!

Knina profile image
Knina in reply to Starfish123

No estrogen because of the migraines, only progesterone. I read that Mirena causes migraines, headaches, weight gain, etc and it can move (scary). So I am wondering in general if it worked for you in order to reduce pain. I do not have bleeding except for 2 days.

Sunflower-girl profile image
Sunflower-girl

I've just been recommended to get the Mirena once my intense pain stops (who knows when that will be). She said for me it is the best option as I have extremely heavy bleeding.

Kattykat80 profile image
Kattykat80

I had a Mirena fitted at my last laparoscopy. Have to say its really improved my periods. I am one or the very few that still has them but much much lighter and the pain has improved greatly

I have put on weight though that's a downside!

Knina profile image
Knina

Hi kattykat80, did you gain a lit of weight? What about mood swings and anxiety?

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