First of all - Apologies for the long post!
As some of you may know, I had a diagnostic lap exactly 2 weeks ago today which did not find anything. When the nurse discharge me after my lap, she told me to go to my GP if I was still in pain (which I found a bit funny as I am in pain every single day..).
Anyway, I went to my GP tonight. I saw a locum GP who was truly amazing and who has been the first one to make me feel that it's not all in my head. I told him that I have been feeling that no-one has been listening to me and that sometimes I feel it is all in my head, to which he replied that if I am in pain, obviously it's not in my head, that means something is wrong. It was like a breathe of fresh air just to hear this from a professional doctor!!!
The GP took a total different approach than every doctor has taken before and asked me where my pain is located most of the time... i showed him this spot on my right side of my lower tummy and he asked if he could have a feel of my tummy. He pressed right on where my pain is usually located and worse during my period and it was pure agony!
He told me that this was my appendix and that I might have chronic appendicitis but he said that it also sounds that I have gynaecological issues anyway given the other symptoms I presented to him (painful, heavy periods, painful sex, etc...). He told me to ask the hospital that did my lap if they checked my appendix at my follow-up appointment as my surgery notes on the system does not say anything about it and take it from there. He also mentioned getting my Mirena coil removed as it might not agree with me and cause me even more pain which I will probably do after my follow-up.
Anyway my whole point is after that appointment, which gave me some hope on potentially getting some diagnosis, I went home and did a bit of research as my appendix pain gets worse with my periods so I looked at how both could be linked... I stumbled upon Endo of the appendix which mimics appendicitis symptoms and according to several journal articles it is super rare and therefore not always diagnosed by routine diagnostic lap, most of the time it comes back positive for endo after the removed appendix was sent to pathology for analysis...
I was wondering if any of you has Endo of the appendix or have heard of it? If so, which symptoms did/do you get?
Many thanks in advance! xx