Endometriosis on Appendix : Hi everyone, I... - Endometriosis UK

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Endometriosis on Appendix

MD54999 profile image
8 Replies

Hi everyone, I had a laparoscopy yesterday to remove a large cyst from my left ovary and the surgeon told me I have endometriosis all over my bowel and also all over my appendix. He recommends removing my appendix - just wondering if anyone has experience of appendix endometriosis and how you treated it? It seems to be asymptomatic but physically quite severe. I haven't seen many updates on this type of endo. Thanks.

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MD54999
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8 Replies
Starry1977 profile image
Starry1977

they found it on my apendix but it was just left 🤷‍♀️

MD54999 profile image
MD54999 in reply toStarry1977

Thanks for the response! I wonder how they assess what's severe enough to be treated. My appendix seems to be completely covered so maybe it's just easier to take it out because it's so far progressed.

Starry1977 profile image
Starry1977 in reply toMD54999

I think mine was superficial so maybe that's why. All my severity is in POD

Hooplove00 profile image
Hooplove00

I had mine removed due to endometriosis, in May of this year. The surgeon noted it would’ve been unethical and unsafe if they left it in.

MD54999 profile image
MD54999 in reply toHooplove00

Thank you, that's really good to know! Did you get it removed by a colorectal surgeon or a gynaecologist? Definitely planning to get mine removed too, the surgeon told me it's very inflamed (but not his specialist area) so I'll hopefully be able to get that done during my next surgery.

Hooplove00 profile image
Hooplove00 in reply toMD54999

I got mine removed by a gynecologist! Yes, hopefully you can get it out your next surgery 🙏🏾 I didn’t know how serious it could be.

MD54999 profile image
MD54999 in reply toHooplove00

Thank you x

Hooplove00 profile image
Hooplove00 in reply toMD54999

Absolutely!

Xx

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