Symptoms
2 years ago: heavy periods and chronic fatigue
1 year and a half ago: left hip pain (initially thought it was a strain)
shortly after IBS-like symptoms, diarrhoea followed by constipation accompanied by what felt like interstitial cystitis-frequent urination or need to urinate where I felt something was blocked.
Symptoms persisted but got milder with dietary changes until I got pregnant (unplanned) a few months later. Symptoms subsided during pregnancy and for a few months post-induced abortion, then started returning.
A month or so later and I was abroad all summer. I started feeling a heaviness in my pelvic region, mainly at night and if I were to concentrate on the source, felt around the left side. Once during this month I woke in the night to a stabbing pain beneath my left ribcage.
A month later after my period I felt the heaviness during the day and felt a frequent need to urinate/defecate all day long. The pelvic pain got so severe I couldn't think about anything else. Also had pulsating pain in left boob, left shoulder pain and headache.
I returned to the UK and went to A&E, ended up in the gynecological ward of UCLH. Stayed for a week, had ultrasound (small, supposedly functional cyst on left ovary). CT scan (no dye) they said most things seemed okay, mentioned that there was a lot of gas in intestines/bowels and didn't seem worried. Got referred to pain clinic and for laparoscopy. Got prescribed the pill.
After a month or so later (December) the pill started to reduce urinary and pelvic symptoms and I stopped having my period.
Mid-February, had an ultrasound ahead of the laparoscopy and hysteroscopy. Small cyst was there still and had grown marginally.
2 weeks later, diagnostic laparoscopy. No cyst found, no endo, nothing. Sent home.
My partner's visa expired in early April, we had to leave the country and moved to South Korea where he is from. He fully supports me--I have had these crippling symptoms for so long without a diagnosis.
Pain symptoms were still kept at bay until late April when I had mucus in my stool. A week later I started to have break through bleeding and same pressure in lower left side of pelvis. I came off the pill to allow myself to bleed, frequent urination and IBS-like symptoms returned alongside deep pelvis pain, again on left side.
Now feel most days like this, only a combination of tramadol and naproxen keeps the symptoms at bay, but they return with a vengeance on days when I try going easy on the medicine.
I had a scan here in Seoul, the cyst on the left ovary is back but they said it's likely functional again.
Considering returning to the UK to go private but no idea where to begin.
Could this be endo? Could it be something else?
What is this pain... Fed up!!
Is it Endo
