I guess I'll tell you a bit about what's happening with me. Any advice would be great.
I was diagnosed in January this year. Stage four 'aggressive' endo. Like most I had many symptoms and had been back and forth to the doctors. I am 38 soon to be 39 and I was concerned about my fertility - so asked for a check up. This is when they found a cyst - 8cm by 5cm
I had a larposcopy and they found a chocolate cyst on my left ovary. They drained it and then burnt some lesions off.
My main aim was pregnancy so the consultant said to keep trying naturally and hopefully it works.
After the operation I was in a lot of pain in the entrance of my vagina area - on the right side.
I always got pain there at certain times in the month and when having sex.
Anyway the pain was much worse and continuous - so I had an operation and there were two endo cysts. They have now been removed.
My consultant told me it's very aggressive and suggested medication for fake menopause. I was reluctant cause of the side effects and he was too because of my age and wanting to get pregnant. So he is referring me for IVF treatment.
My other symptoms haven't got any better. Fatigue is the worse - since I am naturally a hard working active person. Also the constant need to urinate and pain at differing times in the cycle. I also get sickness, headaches and migraines a lot. I do have period pains before and during period - but not excruciating. I get very low and find it hard to cope at work - which isn't me.
Also the symptoms mostly occur the same day of each cycle. (My cycle is 23 days.)
I was concerned recently as my symptoms haven't gotten any better and the peeing sensation and fatigue had been very bad as well as the thrush. So I asked my doctor for a scan of my pelvis - this was just this week Monday.
They said the endo cyst on my ovary is back at 6.5cm - it's grown that much in just four months.
Obviously I am now very concerned and have an app with consultant next week. I am still awaiting app for IVF too.
I'm guessing another operation and then IVF if I'm lucky.
IVF is super scary too - taken me a few months to come to terms with that happening.