I am new to all of this, but I thought I would give it ago, now I know I am not alone.
I was admitted to hospital in October with really bad back/abdominal pain , they kept me in for 5days did scans and x-rays , I was sent home with antibiotics and lots of laxatives,But was no better, so I saw my doctor and they said I had an infection.
Still this so called infection would not go.
I was admitted to hospital again in November, where more scans/ x-rays were done, they said I had blood in my urine and yet another infection, I was sent away with more antibiotics and even more laxatives.
I saw my doctor a couple of weeks later and was sent for an ultrasound where they said I had lots of fluid and they couldn't see my left ovary, I was then booked in for a laparoscopy in January where they said I had 2, minimal bits of old endometriosis that they removed and was sent on my way again .
They booked me in for a colonoscopy in February because they said my bowel wasn't working, but I had no problem going to the toilet.
But I had the colonoscopy and that was completely clear, as was expected.
By this time I had been off of work for 4 months and in pain ever day .
My doctor gave me a prostap injection in March and it did nothing at all, I then had a major onset of pain again in may and ended up in hospital again for 3 days.
I had another xray and an ultrasound which showed I had lots of fluid and still no left ovary , but no one wanted to do anything, I was passed around to so many people I didn't know if I was coming or going.
I was finally allowed home but in as much pain as I went in with, it was that bad I couldn't walk and was even wheeled out in a chair.
They gave me 3 lots of antibiotics and said I would have a follow up appointment (still nothing). I left the hospital and went to see my doctor, she was disgusted that they had sent me home in the state I was in, and told me to stop taking the antibiotics because I had no infection at all. And she referred me to private care.
In the meantime I was told I had a b12 deficiency and was having injections for that, and was told that's why I was so tired all the time, after my 4 injection my results came back from Southampton with no problems and no b12 problem, so was told just to have the last injection anyway, so no explanation of why I was so so sleepy.
I have now been seen privately and definitely feel like I am getting somewhere at last, i had an ultrasound and my left ovary was found at last but was really high up , so was in really bad pain for 3 days after. I am booked in for a laparoscopy again in September so he can have a good look around. I was prescribed synarel nasal spray about 3 weeks ago and my pain had gone completely🎉 I was so so pleased, although I still feel really sleepy.
I woke up yesterday morning in pain again,even tho I am still on my nasal spray, it's worse on my left side, I don't know what's going on. Has anyone else used this spray,??
Thank you for taking the time to read my story so far 😀