My Endo was diagnosed almost 20yrs ago right after i had my1st child but stayed pretty mild for the first 5yrs until I suffered a m/c and it was discovered i had a large endometrioma. I had pretty extensive surgery and they removed as much endo as possible as well as the large endometrioma which resulted in me losing a portion of my left ovary which was left pretty damaged. The surgery was a great success and left me pretty much pain free but it did affect my fertility so it took us 10yrs of treatments before we had our son.
I hadn't had any problems at all until Feb this year when I went out to the supermarket and began to have the most awful pelvic pain and the staff had to call an ambulance. The ambulance crew said my blood pressure was through the floor so i was rushed to our local A&E dept where i was admitted to the gyn ward and was told my white cell count & CRP level where through the roof and that i had Sepsis. After many scans and xrays they could not find the source of the infection but the ultrasound did find 2 endometriomas (1 on each ovary) but after days of tests the source of my infection could not be found so after a week of IV antibiotics i was allowed home.
Two weeks later I went back to the hospital to the gyn clinic discuss what had happened and they said that they think one of my cysts had bled out and caused an infection but they couldnt be 100%, but i was scanned again and they told me one of the cysts was now grapefruit sized and the smaller one was around 3cm so they arranged a laparoscopy for me for next month to have them both removed, so before i left the clinic i had a load of bloods taken which they said where routine to check i was completely clear of infection before my surgery.
Two days later i received a phone call to say that the surgeon doing my lap felt that the damage to the left side was so extensive it would be best if i would agree to have my left ovary & tube removed along with the 2 endometriomas, i told them i wasnt happy with losing my ovary as we were planning on trying for another baby this year but after some convincing that we could still conceive with just one ovary i agreed.
A few days passed and just as i was coming to terms with the new surgery plan i receive yet another phone call to tell me one of the tests they did was a CA125 test which had came back high so they had cancelled my surgery and ordered me a CT Scan instead. I had the CT scan 2 wks ago and got a phone call on Monday to tell me everything was fine on the scan and that my surgery was back on for next month.
But then yesterday I get yet another call to tell me that my surgery has been cancelled again because my case went to a meeting on Wednesday and the specialists looking at my CT scan said they wern't happy and want me to have MRI scan now before surgery, so i then asked how long im likely to wait on my surgery now as i am getting fed up waiting and just want it over with but the Dr just said "oh we will discuss it more after the MRI scan results because i think the specialists want you to have a full hysterectomy now!!".
I almost took a heart attack telling her that I didn't mind losing one ovary but my surgeon had told me last week my fertility could be increased for the 6 months following my lap so we were actually planning to start trying for another baby right after my surgery. She just said "well lets just concentrate on having the MRI done and see what the specialist say".
I am just feeling so devastated today that 2 cysts that are giving me no pain at all can lead to me needing a total hysterectomy :(.
Sorry for rambling I just feel like everything has suddenly been taken out of my hands.