I was curious to know how common it is to have an infection that is endo related.
Last July after one month of feeling an odd pain on the left side of my pelvic, around where the ovary and tube is, my pain escalated to the point where I went to the emergency room. They just did and ultrasound and saw that my left side mass was so big it was overshadowing my right side. They couldn’t even make out the right side. Plus they couldn’t make out what was ovary or tube on the left side. Two days later I had an obgyn appointment. The doctor thought my cyst was bleeding into itself hence causing the pain, so we went ahead with surgery.
I woke up from surgery to find out that I had a tubo-ovarian abscess (TOA)! She said it was about 10cm! Pathology then came back noting that the bacteria which caused it was group b strep!! The bacteria that flows all throughout our GI system. Doctors say this is an uncommon bacteria to have caused my infection. As usually it’s caused by a sexually transmitted disease bacteria like ghonorrhwa or clymidia. He even said it’s a pretty uncommon case. I showed no fever, but it might have been because I was taking Tylenol and Advil the whole week leading up to it so maybe the medicine was keeping my temperature normal? But then again TOAs sometimes aren’t presented with a fever. Anyway the TOA was drained and the doctor had to patch me up because they couldn’t do anything else since I was so inflamed. This was also when I found out I had stage iv frozen pelvis endo.
I have a hydrosalpinx on the same side too that was discovered years ago. So our theory is that the hydrosalpinx made it hard for my body to get rid of the bacteria, thus causing the infection.
How many of you all have had infections too? And what happened?
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marti323
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Years before i ever found out i had endo i was admitted doubled over screaming in pain they said i had a pelvic infection and insisted it must be a sti despite the fact all the tests for a sti came back clear i spent a week in hospital with it
Wow fascinating. I’m sure if you had what I had that it put you in so much pain, it must have been a pretty sizable infection as well! Hence the antibiotics for so long. Well now you know a case (me) where someone had an infection but it was not from an STI! Did you have a fever?
Yeah i must have had an temp as i remember them putting fans on me to cool me down it was awful i remember being on gas and air in the ambulance for the pain on the way to hospital, good to know there is someone else who experienced something similar and it wasn't an sti
Also the antibiotic that the doctor had me on made me think she also prescribed it for me when she thought it was from a bacteria that was common from STIs. At one week post op she switched me to another antiobiotic after she looked at the pathology report and saw what strain of bacteria ACTUALLY caused it
Hey, during my lap my surgeon found out I had a pelvic infection which he thinks was caused by a cyst bursting.
He pretty much left it during surgery and at my post op appointment last Friday he was useless and didn’t make much sense. Probably why I still have issues
Yes, I have just posted about this! I had sepsis with my TOA, but I also get quite frequent non sti pelvic infections! It was how my endometriosis was diagnosed! We must have severe disease, or be very unlucky, as I don’t think this is all that common, but I feel your pain! Sepsis is no walk in the park, you was lucky it didn’t progress like mine! Hope you get well soon.
I was in agony last November and literally was screaming with pain. Turned out to be a pelvic infection. When I flare up, I can feel my cyst/ovary getting stuck on my hip. The pain was so bad I also got concussion from a seizure.
Does anyone else regularly feel something catching under their hips or even ribs personally. Wishing you all the best 🌷
Regarding the thing getting caught under your ribs... Every now and then, I feel like something is caught against my lower left ribs. I can bring this on by leaning to the left, to kind of fold my left side. Then when I lean to the right, stretching out my left side, it makes a dull click sound. As if something was stuck, and then it gets dislodged. It doesn't happen on the other side. I've googled for years and never found anything. I hadn't even related it to endo. Thought it might just be a muscle against the ribs. It doesn't hurt, it's just really strange. Does this sound similar to what you get?
Hiya, it sounds very similar. Usually its just my hips but when I have a flare up, you know the ones which make you look 9 months pregnant, thats when it catches on ribs. Like you I have to lean to the other side or push down on area and then it pops back out. It makes sense that its a muscle thats being pushed up with inflammation.Take care
Yeah, that sounds so similar! I'm amazed that somebody else gets this too. I've never heard of anyone else having this before. Thank you, you take care too x
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Hydrosalpinx and blocked tubes.
Has anyone had a ovarian cyst rupture?
Anyone had adhesions removed to then be told it isn’t endometriosis?
Has anyone had endometrioma return & get the chance to freeze eggs before ovary removal? or if not how did you cope?
