My pain started at 13. A week in hospital ended with doctors telling my mum it might be endo but they didn't think so because I was too young. Mum not knowing what that meant took me home and I was left to get on with it.
I had an ectopic pregnancy at 18 and they removed my right fallopian tube. My tube split and I bled internally for a few days before my tube tried to burst. A blood transfusion and emergency surgery and the doctor told me it would be a miracle if I was to fall pregnant naturally. 3 rounds of IVF followed, one worked but I miscarried at 2 weeks.
So fast forward 10 years and my symptoms have got steadily worse. My Gynae diagnosed the Endo 4years ago and classified it as level 4 and frozen pelvis. My bowel is attached to my womb, my left ovary is stuck somewhere it shouldn't be, my bladder is involved in this little party too and hey, it is all good fun. My periods have now reached a level of pain that terrifies me. The bleeding I can just about deal with, but the pain cripples me and l am now unable to carry on and I have started taking days off work. My last one had me on the kitchen floor writhing.
The only help I have been offered is a Mirena coil or the pill. Neither of which are an option for me. So am I really destined to spend the next 20 years managing this with mefanemic acid and heat packs till I hit the menopause??