I'm 20, I've had Endo for 5 years but only got it diagnosed when I had a Laparoscopy done this October. I've had a constant battle with doctors to get help. To start off with they were adamant that my symptoms were Gastro not Gynae related no matter how much I told them otherwise. They dictated to me what was wrong with me instead of listening to what I was actually going through! So for 5 years I was diagnosed with everything from ulcers and hernias to intolerances to IBS, they even tried to tell me it was all in my head at one point, I took every peppermint oil capsule, mebeverine, omeprazole, laprazole, even laxatives! you name it I took it all in favour of the "trial by error" method.
No thank you! So finally last year I got a new doctor and in one meeting she got it! I described my symptoms and she said straight away "I think you've got endometriosis" and the wheels were set in motion, I finally knew what I had, treatment would start and I would stop being in agonising pain, stop feeling exhausted all the time, stop feeling sick and bloated and dizzy, right?
WRONG. After repeated scans and tests (never understood why they repeated them if the only way to actually see if you have Endo is through investigative surgery!) it took 9 months for me to actually get the surgery. In that 9 months. I lost my job, because I was too sick to work. I lost my house because I had no money because I couldn't work. I moved back in with my hateful hag of a mother. My hateful hag of a mother left me with nowhere to go because she couldn't take the time to understand I wasn't lazy, that yes, I am very sick, no I do not choose to be like this, who wants to spend every day writhing in pain in bed all day?! So I ended up moving in with my partner and his parents.
2 months after my operation. I'm still no better off, the doctors aren't very forthcoming with how to alleviate my symptoms apparently I have to wait 10 weeks for my post op appointment!!! how I should cope with what my life has become. I feel like my entire life has been destroyed by this illness and that people are so hesitant to help and give support. I'm sure I'm not the only person who feels like this either. How do you carry on with an illness no one understands, no one WANTS to understand, and is so invisible that people don't notice how debilitating it is! Just think your "lazy" or a "hyperchondriact" or even that it's "just period pain, it's normal.."
JUST PERIOD PAIN?! What so it's normal for me to feel like I'm being penetrated by a burning hot poker repeatedly every month is it? Or should I say near enough everyday! BULLSHIT! Being in pain is not normal! Not that level of pain and for it to be all the time, Doctors should take it a bit more seriously.
Sorry for the nonsense rant, there were just a few things I needed to get off my chest, I've been dealing with this alone for a very long time and feel like I'm finally among people who know what the hell im going through right now! if your still reading thank you for taking the time and any tips, methods, recipes, absolutely any information on how to help myself or to help others understand, especially finding a job that's understanding of my condition, would be most appreciated!!