Background story - diagnosed with endo 4 years ago after 7/8 years of pain. Minimal endo found and lazered by general gynaecologist. Went back a year later as still in loads of pain, another op with no endo found and Mirena coil fitted. Mirena helped for 8 months then all of the pain returned so had it taken out.
Got myself referred by my GP to a BSGE accredited centre after my own research. Thought I had finally found my answer. The doctor explained that my endo has probably been missed and is growing deep. Told me to go to pain management first. Have been with them a year - have had 2 rounds of injections/steroids to help with my nerve numbness and pain that I get in my right leg and bum cheek.
Finally spoke about an operation with the BSGE and he turned around and said he would have to dissect my nerves and still may not find endo. I said I would have a think about getting the coil again if it helps for one more year and he then said he didn’t need to see me again?!?!
My pain is horrible, I’ve had two days off work because of it. It hurts on my right side to urinate and poo and it’s difficult to sleep as my lower back and right hip is killing me. I’m used to this horrific pain as have been dealing with it half my life now. I’m fed up. I feel dismissed, once again, and this time by a BSGE hospital!!!
I sent them an email asking if anymore tests can be carried out such as an MRI or more tests to figure out what is causing me all of this pain!!! I’m so fed up. Sorry, just wanted to rant really.