Just need some advice on how to make my symptoms improve or things to try that might help.
I've had 3 laps widespread Endo including bowel and bladder. I have Endo, adenomyosis and interstitial cystitis. I had Endo removed by a top gynae consultant in March 2015 no improvement of symptoms so had a presacral neurectomy which is cutting of the nerves to uterus 7 weeks ago to hopefully help my pain. No endo had grown back which is good news. I also had the mirina coil fitted when the surgery was done 7 weeks ago. So far I'm feeling no better. I haven't been able to go back to work as pain is still so bad. The coil is making me bleed most of the time. I stopped bleeding Sunday last week and yesterday I nipped out for a coffee with my friend for a couple hours and I felt totally exhausted when I got home then woke up this morning feeling like I had run a marathon. I've been in so much pain all day then I've just started bleeding again. It seems relentless this coil. The pain tonight is the same agonising pain as I always have with a period but instead of happening once a month it's now once a week.
I've not had thrush since I was 17 I'm now 32 but since the coil was fitted 7 weeks ago I've had thrush 3 times. I've spoken to my consultant who says it's the hormones in the coil causing the thrush and it may or may not settle down.
I'm at a total loss with what to do. I take about 7 vitamins a day which help a little with the fatigue. I have to take Diclofenac, codeine, tramadol, amitriptyline everyday and morphine when it's so bad. I feel like a walking zombie. I've had to reduce my hours at work to 24 but at the minute feel like I'm going to have to give up work completely. I've been off for about 10 weeks now and not sure when I'll be able to go back.
For the last 2 years I don't go out anymore, i can't drink alcohol cos of all the pain relief, I can't make plans because I'm never well enough to go anywhere I just feel like my life's over at 32 I feel more like 102.
I've no idea what my next step is. I know everyone has said the coil can take 6 months to settle so maybe there is time to feel better but not sure I can cope with this for 6 months getting thrush and the awful period pains every week.
I'll literally try anything that anyone can recommend to help my symptoms I want my life back. I use to go out every weekend partying, meals out my life was so busy all the time and I loved it but now I'm lucky if i go for a coffee then spend the next few days feeling like ive run a marathon.
I've got a yoga for beginners dvd which I'm going to try soon as I feel I can. Any other ideas? Vitamins, diet??? Any info would be fab cos I don't want to feel like this for the rest of my life I'm not sure I could cope with that I want my life back.
Sorry for the massive post. I'm usually positive but I'm losing the will with this now.