ladybird77 years ago

Really feel for you. I guess its your decision but I would go to doctor now - you don't have to change treatment options until after your holiday but they might have something that will help now. I would. Hugs xx

Croydebay in reply to ladybird77 years ago

Thank you for taking the time to reply to my post it's much appreciated. I took your advise and made an app can't get one with my doctor until 10th August 😬 But managed a phone app tomorrow so will see what she says. I just feel so emotionally and physically drained with the horrible disease and to think I have to cope with it for at least we anotjer 10 years the thought scares me 😞

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KSvedenmacher7 years ago

I hear you, for me any given pill usually lasts about 3 years before I have to change. I have done this for the last 27 years (with a break for surgery and 2 pregnancies) and now I have finally given up and am going to have surgery again in about 6 weeks. If you don't want to have more surgery, you can see if another pill agrees better with you. Cerazette never agreed with me, I came off it after 3 months, but maybe there is something else better for you? Have you tried the combination pill?

Croydebay in reply to KSvedenmacher7 years ago

Thank you taking the time to reply much appreciated 😀 This is what I was thinking that maybe it's stopping working properly as I've been on it nearly 3 years! I just don't know if there much options for me as I can't take the combined pill due to high blood pressure and I really don't fancy the coil at all it's just not for me! I don't want more surgery unless I really have to! Feel for you having to have your 3rd surgery it's just not right is it having to keep going though this process! Do you mind me asking how old you are as I was kind of hoping the older I get (I'm 35) the easier things may be get but not sure if that's true!!! I just feel so mentally and physically drained from this horrible disease and like you I have two young children too. I just feel it over takes my life and am trying my hardest not to let it X X X have you tried micronor? X

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KSvedenmacher in reply to Croydebay7 years ago

I am 39 and I didn't find it got better over time, rather worse. Sorry to be a downer. This will only be my second surgery though so I can't complain too much. I do hope this surgery will take care of it forever. I am having a full hysterectomy with removal of my ovaries and all the endometriosis. I suffer from horrendous periods (massive clots and heavy bleeding) which is why I opted for the hysterectomy.

I haven't tried micronor, no. I am done with the pill though, six more weeks till my surgery and then I don't have to worry about the pill any longer.

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Croydebay7 years ago

This is what I seem to be reading a lot that it doesn't get any better with age sadly! I think that will be a similar route for me to what your having done I've only had one lap too and know the next op I have with be to having everything out but am just trying to persevere for a little longer if I can. This is why I went on the pill after my lap as I was passing big clots and very heavy bleeding. I couldn't bare to have that again but I feel my symptoms are worsening each month and I keep bleeding lots too which is getting heavier each time. I've not had any periods for a good couple of years on this pill so that's why im thinking it's not working anymore. Did you ever try the coil? This is all my doctor seems to keep throwing at me but I really don't feel it's for me at all and feel a little bullied into having it! X

KSvedenmacher in reply to Croydebay7 years ago

I have been offered the coil, but like you I never felt it was for me. It just felt wrong, I couldn't imagine having something permanently lodged in my uetrus. I have also heard horror stories about the coil and instinctively feel that that would be me.

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Croydebay in reply to KSvedenmacher7 years ago

That's exactly how i feel 😀 Glad im not the only one who thinks that! I feel my doctor doesn't respect when I say it's not for me! I just know I wouldn't like it X

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Tboag7 years ago

You need to get your gp to refer you to a bsge specialist centre, and they will operate and excise any endo, this is better that diathermy as they cut it from root, good luck xxx

Croydebay in reply to Tboag7 years ago

Thank you for your reply! I think deep down I know that's the route I need to go down but am just putting it of as really don't want more surgery at the moment 😬 We don't always have a choice do we sadly! Funny as I've just been looking online to see which one is closest to me! Have you had this done? If so have you found it to be good long term? X

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Tboag in reply to Croydebay7 years ago

I know what you mean, but like you said, not much option, I had a laparoscopy last march endo removed and adenomyosis diagnosed then had a hysterectomy in July last year for adenomyosis both under a general gyne, I'm still in daily pain. I'm now thankfully with a bsge specialist and am awaiting a laparoscopy with him, so fingers crossed for me, it will help, xxx

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Peenie123 in reply to Tboag2 years ago

Hi, which BGSE centre did you go to please?

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Croydebay7 years ago

To think that you have to go all through that then still be in pain is awful I really feel do you! This is why I'm putting it of as seem to read this a lot! I really hope things get better for you after your next laparoscopy. I just don't know what to do anymore I really don't 😬