Best of luck with your surgery - I know how scary the not knowing is, I hope you get some answers soon. The findings do sound like endo is the most likely cause x

Thank you. I'm suspecting this too. I was diagnosed years ago but have never had a chocolate cyst - I don't know if one could have formed since December, as there was nothing on my MRI. Still, that pain is totally gone now and it does seem like something happened which has now stopped, so I think that's the most likely explanation. I suppose it could have just been a small regular cyst.

Years ago, before my pain was properly controlled, I used to end up in A&E about once a month since I would collapse due to pain but haven't had to go for years. They're so useless that I'm reluctant to go - I was considering it yesterday, kept taking a bit more oramorph and thinking I'll go if it doesn't help in ten minutes, but then it knocked me out for a couple of hours and when I came round it was gone. I realise now that was pretty stupid, it could have been an ectopic or all sorts, so if it happens again I will definitely go.

I don't feel like I have a temp or any other sign of infection but am keeping an eye on it and will go to the doctor if anything happens.

I'm used to severe pain during periods (I get pain every day but the first day or two of each period is getting worse every month) but this was a whole new level. Hoping it was a burst cyst because then it shouldn't come back! I really don't want to go back on the pill but the way things are worsening each month, I'm getting concerned about the damage I could be doing with every period. Then again, my cycle is finally regular and the hormonal issues I've had since I came off zoladex in 2009 are finally sorted out. I just don't want to put more hormones into my system but I realise that might not be wise.

I was referred back to my old Endo specialist last year but he has retired so I saw the specialist who has replaced him. Things weren't good then but not as bad as they are now. I said I wanted surgery even if I only had a few months relief, so I could reduce or get off the morphine. He said he wanted to see the MRI results and had wanted me to see his colleague who specialises more in drug treatments and chronic pain management, and then we could decide. The MRI report showed adenomyosis for the first time and that my uterus is now retroverted, but then says there's no sign of Endo or severe adhesions - which is odd, as surely the retroverted uterus must be caused by adhesions as it was normal before. My Endo hasn't ever shown up on an MRI so I'm not surprised about that. I'm just concerned that when I see this other specialist she will say that she thinks another lap is a bad idea (I've already had two diagnostic laps, three treatment laps and a gallbladder op so my belly button is quite a mess). I really want the chance to have a bit of relief, get my morphine down, know what's going on in there and increase my chances of conceiving when we try. If she says no I guess I may as well go back on the pill.

Sorry, that was a huge rant, I didn't mean to go on. Can't believe you're going through this pain multiple times in a week, you must be in agony. When are they going to operate? I really hope they can help. Xxx

Forgot to say, my periods are usually pretty dark red with clots for the first couple of days (rarely ever bright red) but then it's all brown for the rest of the week, so I'm not sure I would notice if I were to pass the contents of a cyst. If you can pass the contents, does that mean it goes down your Fallopian tubes and into your uterus? That's scary as that sounds like it could cause a lot of damage and scarring (my specialist is reluctant to even do a dye test unless it's strictly necessary as even that can cause damage to the tubes).

I'm sure I've heard from other Endo sufferers over the years that passing old blood is a pretty common symptom, but for the life of me I can't remember why.

I have had the pain on the right side for 6months. I have gone to the er and thry said i have cysts. One ruptured inwas in excruciating pain. Was given morphine and zophran for nausea. I just had surgery done for hysteroscopy and biopsy of the fibroid. Supposed to go on the 27th for post op. I again got the excruciating pain back this month. Im getting tired of living with this pain as it juat about ruin my relationship with my husband. I dont want to go and get a hysterectomy as i just started a new job which took me a year to get one. Im lost. 

Thanks Cazza - what you had sounds awful. It's interesting that it was also causing pain in your leg and groin. My first thought was that maybe it was a cyst but, since that particular pain seems to be gone, if it were a cyst I guess it would have to have burst. I've never had anything more than the occasional small cyst, and my ovaries appeared normal on the MRI scan in December. I don't know how long cysts take to grow.

Thinking about it this morning, I realise how stupid I was yesterday - I really should have gone to the hospital, it could have been a ruptured cyst or ectopic pregnancy etc. If it comes back today I will definitely get some help.

I'm seeing my endo specialist in a month - last time I saw them in December things weren't so bad so we didn't definitely decide on another lap (I've had several so it's a tricky decision) but now I'm adamant I want to try. My last one was 3 years ago and not done by a specialist, and the MRI suggests things are worsening. Hopefully they'll agree and I won't have to wait too long.

Thanks again x

Thank you, fortunately I'm under the specialist team at the John Radcliffe in Oxford - it's a few hours away but totally worth the trip. My mum currently has terminal cancer which spread to her ovaries which is really scary, but she hasn't really had any pain from it. So glad to hear it wasn't cancer.

I think it most likely was a burst cyst since I'm a little sore in that area but no actual pain - the pain was awful, I couldn't speak and was having to focus on just breathing in and out. Thank god I have a good supply of painkillers. I've had times when I've gone to A&E and all they have me was a paracetamol drip when I have morphine at home and honestly I was scared of that happening, but if it comes back I will definitely go. No sign of an infection at this point but I will monitor it.

My appointment in oxford is in a month so I will try to make it to that, I doubt they could move it forward - the only down side to going somewhere so good is the waiting times!

Sending you big hugs x

Thank you - that's very interesting. I would have thought if it was endo then the pain would continue, but in that case maybe there is just a lot of Endo there. There's obviously something going on but goodness knows what. I will call and see if I can get my appointment moved but they're so busy I highly doubt it. I'll have one more period before the appointment so hopefully that won't be as bad. Fortunately I don't bleed between periods but they last 8 or sometimes 9 days and last month my cycle was only 24 days, there's just so little time between the horrific pain.

Thank you - my pain is generally low down and central (I think this is the adenomyosis which is in the muscle of the womb), with stabbing rectal and vaginal pain. I do sometimes get a bit of stabbing pain on the right, and in the last month or two I've had this occasional right side pain where pressing on the area would hurt, I was worried it might be my appendix but it would pass. The other weird thing I've had is pain around my lowest rib when breathing in and out, about a week before my period. Basically I'm falling apart!

I'll see what they say when I see them, or if it gets that bad again I will get some urgent help. Thanks again x

Thanks Linda. I've been dx with Endo for 11 years now, and they found adeno on an MRI in December - I am constantly in pain but this location and severity is a new one on me. Hoping that it was a one off, frankly!

hi cupcakegirl, i had something very similar during my last period, and i simply don't know what it is. did you ever figure out what was going on?