I was diagnosed with Endo 10 years ago (20 years old), it was around my bowl, kidneys, intestines as well as around my tubes. It took me a little over year to get told i had endo. This was after a spell in hospital, where i was made to think i was making it all up.
I had a laparoscopy where they got rid of some of the lesions but I was still in pain and was told they never got it all (for what ever reason, i was high on Morphine).
I have had numerous spells over the last 10 years as others say, you get used to it, but none as bad as a few days ago. It coincided with day two of my period. In between pain i slept with the help of pain pills, every time i stood up i felt sick and just felt horrible, my period has now ended (only 2 1/2 days on) the pain has eased and i'm returning back to normal. I can't use any contraception pills they play havoc with my head!! So pretty much deal with it. . With occasional help of pain pills and laxatives (sorry if TMI) I guess i'm asking should I go back to my doctor, I've moved from where I was originally diagnosed, my current doctors haven't been as helpful as my specialist back in my home town.
I could do with all the help right now, it came as a shock to be practically bed ridden for two days.