I thought I would give you all an update because I have mentioned my daughter on here before and we have now had the operation with Mr T; all was not as it seemed.
My daughter had a brown discharge for over a year and during this time she went to the doctors who prescribed the pill....there's a surprise. After 6 months of being on the pill and still having the discharge she went back and they sent her for a scan. More delays and in March she had the scan with the results in April.
We went through a very stressful time when the NHS consultant said she had possibly stage 4 endometriosis and she also had 3 chocolate cysts on her ovaries. She needed surgery, they would try by laparoscopy first and if not possible they would proceed to cut her open and do whatever was needed. This may have involved losing ovaries.
That was it. No mention of how she would deal with this; she was only 20 and was risking going into surgical menopause. As her mother there was no way I could see this happen.
I read about a guy who is a God known as Mr T. He is not referrable by the NHS and we would have to pay £10k for him to operate. I doubt I need to tell many of you about him. He is known of world wide for his pioneering techniques.
So, on Wednesday my daughter was admitted to hospital in Halifax. They did pre op stuff including pregnancy testing. Her operation was scheduled for the next morning. We were staying in a nearby hotel and I got a phone call from her the next morning. The test had proved positive, twice. They thought she was pregnant and in denial to the extent that they were almost rude to her (they have since apologised). They couldnt do the surgery until they investigated further. She had more blood tests and a scan.
When she came back from the scan I couldnt believe my ears; I am angry and confused. They found no evidence of these cysts. They found a couple of smaller cysts but in different places. Her ovaries were fine and clear of anything like that. What they did suspect though was a congenital disease. Surgery was booked for the next morning and we werent quite sure what he would find. The kind of surgery he was doing was not what we went to him for but having said that, thank God we went to him because he was able to do all he needed to do laparoscapilly(?)
Basically she has a congenital disease that give her 2 wombs, 2 vaginas, possibly two cervix but he couldnt find that. The cysts were not chocolate cysts and they were nowhere near her ovaries. The one near her fallopian tube was advanced and meant he had to remove the fallopian tube. He was able to preserve the ovaries and I think connected both of them to one tube?
No sign of endometriosis.
What is going on? What would the NHS surgery have made of the situation which Mr T described as "technically complicated". Would the NHS have seen the complicated mess and just given her a hysterectomy?
Because of their diagnosis I paid £10k for an operation with a specialist that we didnt need. As I said, I do not begrudge this atall. She couldnt have been in better hands and maybe their misdiagnosis led me to this special surgeon.
Im not sure what to do with all of this though?