I spent most of last week in the gynecology ward in the John Radcliffe hospital in Oxford after my pain got even worse. I struggled through Monday and on Tuesday evening I was near my limit of coping with the pain. I had already taken the maximum dose of my painkillers so my flatmate phoned 111 for me and they sent a paramedic. He was reluctant to send me to A&E (which pissed me off at first, but it turned out to be a good thing). Instead he got me an emergency doctors appt and drove me to the surgery. The doctor was horrified that I still haven't had a laporoscopy after something like 6 A&E admissions requiring morphine, and referred me to the surgery emergency unit, where they gave me morphine and I stayed there until 4am while they assessed me. I spoke to a doctor who said they would not give me surgery as it is not an emergency, but he referred me to the gynecology ward. I ended up staying there until Friday. My pain has never been so bad or so persistent. No matter what they gave me, it just kept coming back like a vicious monster! It was a very difficult few days for me. I was so physically and emotionally drained from such a high level of pain.
I think that admission was definitely a blessing in disguise, as I saw some very good doctors that took me very seriously and the nurses understood my pain and were never reluctant to give me more painkillers. I saw one doctor, who discovered that I am experiencing referred nerve pain caused by the endometriosis, which explains why the pain has got even more intense. She put me on Amitriptyline to get rid of that, and I am seeing her again on 16th June. She took my pain seriously and was very empathic. She knew how much pain I was in and it was such a relief to talk to a doctor who really understood.
I was discharged on friday and I have been feeling weak and tired since. On saturday I literally slept all day, until 5.30pm! My pain is under control with the maximum dose of paracetamol, diclofenac and tramdol. Luckily the Amitriptyline is knocking me out at night like a sleeping pill, so i'm not waking up in need of morphine. I'm trying to get my strength back.
Sorry for the essay! Hope you are all okay x