Sorry to waffle!
I'm extremely lucky as only found out in September after having a total abdominal hysterectomy (due to huge fibroids, thickened uterus and ovarian cyst embedded in bowel) that I had endo; and this was only found due to a heavy prolonged bleed which started in August ( Which was still occurring on op day) resulting in being anaemic All my organs were tied up in endo, which resulted in me loosing both ovaries, cervix, tubes, appendix the job lot! I was told id been extremely lucky to have conceived a child and had a normal pregnancy and delivery. A pretty fast roller-coaster ride!
Since the operation I've been left with considerable pain, cramping, abdominal swelling, UTI, along with alot of personal restrictions and frustration. I've had a Cystoscopy which was normal but still more UTI which very strangely clear up when antibiotics but labs cant grow anything? my main gyna, referred me to an endo accredited consultant who did an MRI which showed endo and adhesions, especially around bowel and vagina he wants to do a lap to remove these but it comes with risks to my bowel, and can't say it will improve my life either?
I've gone from taking no medication 6 months ago to taking naproxen, co codamol, zopclone, along with a combined HRT which both gyna says is a MUST cause of my age, and other risk to my health. Epson salts baths and my hot water bottle are my current best friends. My life has changed since the operation, however i lie awake most nights (even after taking all that medication) in pain wondering which way to go, and will a lap cause me more problems or will the endo continue to be my living nightmare? I'm afraid of the knock affect this is all having on my family and work and what comprises do you have to make in life for this disease without a cure. But worse being told there's a 1 in 7 chance it will be passed on in my genes to my children!
Really appreciate any advise.