I have had everything removed ovaries the lot. I had stage 4 endo. Is there any chance this can come back? I have a scan next week I’m scared
Can endo come back after total hysterectomy - Endometriosis UK
I was only diagnosed for the first time at age 51 seven years after TAH and BSO so unfortunately yes. I assume you had the hysterectomy at a specialist endo centre and had all the stage 4 excised at the same time?
Hi i hope you are well. I'm afraid a hysterectomy doesn't cure endometriosis 😢. I had a full hysterectomy 3 years ago and I still suffer on the daily with pain. It spreads and I now have it on my bladder and bowel and possibly on my spine. I didn't think a scan could pick up endo. Please let me know how you get on with your scan. Take care and stay safe 💛x
I had some on my bowel as well. I had nearly all on my large bowel remove and my rectum removed. Thank you I am so worried x
I'm so sorry if i have made you more worried 😞. I was told for many years that a hysterectomy would cure endometriosis and it wasn't until i was taken back up to the ward after my operation that a nurse told me that it doesn't. I was hoping to be pain free....x
Sometimes it is necessary to remove the uterus and ovaries at the same time as excision and it is complex surgery. Were you discharged from the endo centre at 6 months? If you are having problems I would contact the centre's specialist endo nurse.
I had my operation at a hospital not an endo centre. Yes all of it was removed
I did wonder. Are you in the UK? If so it is a legal requirement to be treated in a tertiary endo centre with stage 4.
I have my scan in a few days I am so scared. I really hope it hasn’t
If it has come back I just think I will leave it I can’t have more ops
I had a total hysterectomy in February this year, they should have operated on my bowel but didn't, I'm in so much pain ATM with bowel pain, it's also giving me chest pain, it feels like I'm having a heart attack, anyone else have this xx
Not sure, definitely had adnomomis ( sorry can't spell it 😂) I don't have the amount of pain I had before , but this last week is hell, they did not operate ( even though they said they were, the bowel surgeon was present) as they said they managed to to do it without him ( bowel was stuck) xx
Yeah my bowel and bladder were stuck together
Do you have any trouble now, and what have you had done x
Sorry I know what you had done , do you have problems now with your bowel, I look pregnant with the bloating x
My scan is tomorrow I’m worried
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