Advice needed - I have both endometriosis and polycystic ovary syndrome

[coffeebean]

Hello Ladies

I was diagnosed with endo from a laparoscopy in 2010, it took me 3 years or so to finally get a laparoscopy, I had been having pain which was becoming unbearable and affecting my job. It wasnt until I ended up in A+E they a doctor tried to touch my abdomen - which was so painful (my pain has always been on the left side) and i described my symptoms thats when he mentioned endo which I never had heard of before.

Both before and after my diagnosis doctors kept saying that the pill stops the growth and I need to go on it- that was my only option that I was given. Since then I have tried various pills but seem to get awful side affects - I was put on the dianatte for 2 years which worked wonders for my acne (pcos) yet I was so depressive and didnt even know it half the time, I was advised to come of it after 2 years and try another then return to the dianette - which I tried, When I came off the dianette I was like a different person - I felt OK to go out and socialise where as before I would have sat at home crying at the thought - my boyfriend urged me not to go back on the dianette - I tried others including cerazette - this made me vomit during the night, so this I had to stop. I spoke to my GP who said to go back on the dianette - stupidly I did but I didnt last long on it - I was bleeding much more than normal and more frequently, I had one of the worst migraines of my life and constantly felt tearful and didnt want to put myself or my bf through this again, so I stopped it.

That was in Sept 2013 and since then I have been advised to have the mirena fitted - however I have read so many horror stories and the fact that my side affects were bad from the pill - im very skeptical.

Since not being on the pill at all - the pain is starting to come back and I dont want to have sex as this causes the most pain now

My Gp advised against the depo injection as this can cause weight gain and due to pcos and my insulin levels - I need to get my weight dowm which I have been working at this past year.

I paid to see a private consultant on Friday who advised me that I should have a MRI, blood tests, oestrogen patch to help my acne (which makes me sad everytime I look in the mirror), mirena fitted during a laparoscopy procedure and investigate the left side further as thats where the pain is. He said if this fails to try the reversible hysterectomy using injections....

I am 26 years old and do not plan to have children but am so worried about all this I dont know where to turn, he quoted me £6000 initally and I cannot afford even the scan which is £800 - however my gp has never offered me this on the nhs and I feel I always hit a barrier. He didnt explain exactly what might show up if anything on the MRI. If I sit back and do nothing I dont want the pain to come back worse and I worry that it might grow or spread?

If anybody would have any advice I would love to hear from you xx

[Princessm]

Im on microgynon 30 and have Tried many different pills and also have had the implant. They thought that was causing the pain so they removed it. I had an ovarian cyst and a few months later it disappeared although I don't believe it to have been nothing i then kept fighting and then ended up finally getting the op to see if I had endo which I did on my uterosacral ligaments. The pain was lower abdo but the worst was on the left side my doctor alway pushed to hard while touching and I use to burst into tears because of the pain. I had my op two weeks ago and I'm still in so much pain. I'm still taking micigynon 30. I hope it gets sorted for you xx

[coffeebean in reply to Princessm]

Thank you for reading through my essay and replying :-). I had also tried microgynon but was told it wasnt helping pcos - to do with the hormones I think. Did you have your endo treated when you had your laparoscopy? xx

[Charliechocolate in reply to coffeebean]

R u on a strict endo diet? X

[coffeebean in reply to Charliechocolate]

No not a strict Endo diet - I am doing slimming world and low GI for my poly cystic ovaries- what is the Endo diet? X

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I have pcos also and my gp put me on Yasmin. It didn't help with my pain much but helped regarding irregular bleeding. I had my first gynae appointment and she was not helpful at all she actually said that the pain was down to me having pcos and what did I expect. The second visit some 3 months later saw a very helpful lady. She told me to stop the pill and put me on prostap injections. I couldn't go for the laparoscopy at that time due to my hubbys treatment for his cancer as the chemotherapy was really affecting him. I explained this to her and hence why we went for injections as I am his full time carer. Had to back in 3 months again and saw yet another lady we told me to stop with the injections and consider the mirena. Come back in 3 months. This time I saw yet another lady who because my hubbys treatment has been changed and his health is a bit better than before decided its time for a look and treat if endo found and also fit mirena. The first pill I was put on was the migrogynon 30 and it made everything worse for me. Each of us are different and the only way to know for sure is try hun. I wish you the best of luck x