Endometriosis UK


Hi all

My friend found this website for me and I wondered if anyone has any advice.

I was diagnosed with endometriosis a few years back after having a cancer scare. The surgeon removed all of the endometriosis but said it could come back. I have always had trouble with sex, it's painful and I can't last long as I get swollen. My periods have always been painful too. Doubled up in pain etc. however over the last 3 to 4 months me and my partner have both noticed that everytime we have sex I start bleeding the next day without fail. Last time I bleed for 14 days had a break for 5 days and now I've come back on again. I've got to the point where I'm exhausted and can't concentrate properly. I am constantly bleeding and my lower back is giving me so much pain too. I have an appointment with the gynaecologist next week but wondered if anyone had any advice before? My gp has recommended a blood test in the mean time. Also when I go to the loo all I pass to blood clotes.

Does anyone have any advice? Anything you have would be much appreciated :)

3 Replies

Hi Laura

It sounds as if it has come back :(

It's quite possible that you've become anaemic and getting that sorted will help you feel better, but beyond that make sure you write everything down to take to the gynae. I don't know your circumstances but given that you're bleeding so much, I would imagine that a Mirena might figure in his/her suggestions.

I'm sorry I can't be of more help. I'd be interested to know how you get on next week

Good luck :)

C x

1 like

Thank you very much for your reply :)

Alot of people have suggested the coil and I think it's going to be the best way forward. I will ask the consultant next week.

I will let you know the outcome :) x


Tranexamic Acid tablets can help to stop a period lasting too long as they are blood clotters but they can only be taken for 3-4 days max per period then you have to stop taking them whether they have done their job completely or only partially.

Bleeding after sex can come either from adhesion (scar tissue) damage to the vagina or cervix (neither of which will be stopped by having a mirena installed) or from the uterus shedding its lining because it is too fragile to put up with the rigours of sex or indeed any rigourous sports which can also trigger the lining to start coming away outside of the actual period.

If that is what is happening then my best advice although icky for some, is to only have sex when you are already on a period. Then any post sex bleeding is just speeding up the shedding of the uterus lining...and hopefully will be clotting and rebuilding a menstrual lining which will stay in place till next period.

Some ladies find having a D&C can help clear out old lining and kind of smooth things out in there.

Sorry to ask, but when you say you pass blood clots on loo trips is that from the rectum or from the vagina?

If the rectum that could also be endo that has grown through in to the bowel but can have many other causes too but must always be checked out.

If the clots are from the vagina, then two reasons for that. 1st is getting older and having endo and the lining is coming away in thick clumps, some of it might be from the previous period, and gotten stuck getting through the cervix because it is restricted in size due to heavy periods irritation and adhesions and the gap the blood and lining has to get through is much smaller these days.

The coil will help the menstrual periods, but not the bleeding with or after sex, as that is caused by damage you are sustaining during the sex act. Sorry but that is the bad news.

It is not likely to be able to be solved and is something you will either just have to adapt your life around by trying different ways to be intimate, using pain killers before hand if it gets painful or possibly by taking blood clotter drugs to make the bleed not last quite so long.

It does put a dampener on random sex, and is probably something you will have to get used to planning for in advance. Preparing your own body by taking blood clotters a day or two beforehand, taking pain killers before and after sex maybe for a few days afterwards as the situation progresses. Each time you have penetrative sex and it damages the vagina and cervix which are already in a fragile state the situation does get progressively worse as each damage causes yet more scar tissue, which next time tears again and repairs and makes more scar tissue.

If there was a miracle cure for all of this I am quite sure we would all be in the queue for it, but there isn't. Personally i found it much easier to just give up normal sex and not have the faff of it all. But you would need a very very supportive partner (or none at all) to be able to do what is actually best for your body.


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