hi all I am writing on behalf of my daughter who has been suffering for years but no one can tell us what is wrong. from early teens suffered with heavy and painful periods . last few years she has felt exhausted all the time, low in mood, and pain in her hips , legs and on both sides of her pelvis. last year had an op to look for endo but none found. Then had Mirena fitted , also carried on with pill, had some relief for a few months then the pain comes back again. I paid for her to see a consultant who told us he does not think she has endo, nor IBS , and suggested an implant and the pill and to have Mirena removed which has been done. for the last few weeks the pain in her pelvis has been awful , particularly at night , a bladder infection was diagnosed and treated, tests came back negative finally after 2 courses of antibiotics but the pain remains. her relationship with her boyfriend is affected as sex is very painful and is always followed by heavy bleeding. last time we saw her GP she informed us that ' some women do get pelvic pain ' and after I insisted she offer some help some amytriptyline for the pain which has not worked. currently my daughter is using a heat pad and hot water bottle as well as co coda mol regularly to try to manage the pain so she can complete the last year of her degree. Also always feels cold even in cyprus in 30 degrees wore a cardigan!
sorry to ramble but want to mention everything I can think of , feel so frustrated as can't help other than filling water bottles in the night!! can anyone suggest anything , she is at her wits end. ps was given a diagnosis of ME but we are just not convinced.