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Experiences with
Cystitis
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Cystitis cystica
I have stuffed with this condition for yrs after the menopause.I eventually found a good bladder consultant who started me on Hiprex and Ovestin cream . My flare ups are less frequent but still every few months causing great distress . Had any one found anything helpful ie diet, medication during a flare
I have stuffed with this condition for yrs after the menopause.I eventually found a good bladder consultant who started me on Hiprex and Ovestin cream . My flare ups are less frequent but still every few months causing great distress . Had any one found anything helpful ie diet, medication during a flare
Toytown1
in
Bladder Health UK
4 months ago
Advice for pelvic pain please!!
I was referred for a camera in my bladder which showed my bladder was very inflamed and 'bruised'- since this I've been told I had chronic
cystitis
and have been having bladder instillations since 2021 until last November 2023.
I was referred for a camera in my bladder which showed my bladder was very inflamed and 'bruised'- since this I've been told I had chronic
cystitis
and have been having bladder instillations since 2021 until last November 2023.
DisneyLover1994
in
Pelvic Pain Support Network
2 months ago
Cystitis post endometriosis surgery
Prior to my surgery I used to get
cystitis
only after intercourse which would go away after a course of antibiotics. However, since my surgery I keep on getting
cystitis
(mostly constantly burning and stinging down there).
Prior to my surgery I used to get
cystitis
only after intercourse which would go away after a course of antibiotics. However, since my surgery I keep on getting
cystitis
(mostly constantly burning and stinging down there).
Ayesfreen
in
Endometriosis UK
8 months ago
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Hypothyroidism, chronic cystitis and histamine intolerance
But however high my doses go, I remain symptomatic, my
cystitis
recurs like crazy and so I tried privately a return to Ndt. Now I have recurrent
cystitis
, very unpleasant (and sometimes scary) histamine intolerance and symptoms and just don't know what to do next.
But however high my doses go, I remain symptomatic, my
cystitis
recurs like crazy and so I tried privately a return to Ndt. Now I have recurrent
cystitis
, very unpleasant (and sometimes scary) histamine intolerance and symptoms and just don't know what to do next.
Reefseeker
in
Thyroid UK
10 months ago
mini pill to stop ovulation/ interstitial cystitis or Endo?
I was then looking into interstitial
cystitis
as apparently this could be mistaken for Endo and lots of people with Endo get interstitial
cystitis
as I do have a very weak bladder during this time and lots of pain but it never shows as a water infection, that’s what was taking me to Docs time and time
I was then looking into interstitial
cystitis
as apparently this could be mistaken for Endo and lots of people with Endo get interstitial
cystitis
as I do have a very weak bladder during this time and lots of pain but it never shows as a water infection, that’s what was taking me to Docs time and time
SJ0514
in
Endometriosis UK
10 months ago
interstitial cystitis
Hi, I am convinced I have got interstitial
cystitis
- if so… how long until diagnoses? I’ve had millions of urine samples, some sent to lab, I’ve had clear renal blood tests and I’ve had thorough examinations of down below and my back etc. is the last thing a scan? And what type?
Hi, I am convinced I have got interstitial
cystitis
- if so… how long until diagnoses? I’ve had millions of urine samples, some sent to lab, I’ve had clear renal blood tests and I’ve had thorough examinations of down below and my back etc. is the last thing a scan? And what type?
Kimbad1990
in
Bladder Health UK
4 months ago
Radiation induced cystitis
hello , currently I am dealing with severe
cystitis
. Apart from HBOT , does anyone know how to cure it completely??
hello , currently I am dealing with severe
cystitis
. Apart from HBOT , does anyone know how to cure it completely??
LuckySrivastava10
in
Chronic Pancreatitis Support
4 months ago
Anticoagulation therapy and radiation cystitis
Is there a correlation between anticoagulation therapy and radiation
cystitis
such as apixaban
Is there a correlation between anticoagulation therapy and radiation
cystitis
such as apixaban
pd63
in
Prostate Cancer Network
5 months ago
Recurrent cystitis is not necessarily bacterial - if recurrent abx fail there may be something else going on!
I thought many would be interested in this article about persistent symptoms of UTIs that may NOT be UTIS https://www.medscape.com/viewarticle/recurrent-
cystitis
-not-necessarily-bacterial-2024a100016y?ecd=mkm_ret_240217_mscpmrk_pcp_womens-health_etid6315750&uac=150045MJ&impID=6315750
I thought many would be interested in this article about persistent symptoms of UTIs that may NOT be UTIS https://www.medscape.com/viewarticle/recurrent-
cystitis
-not-necessarily-bacterial-2024a100016y?ecd=mkm_ret_240217_mscpmrk_pcp_womens-health_etid6315750&uac=150045MJ&impID=6315750
PMRpro
Ambassador
in
PMRGCAuk
2 months ago
Myo-inositol increasing TSH?
Hello, wondering if anyone has experience of taking myo-inositol and any impact on their TSH please? I’ve been taking it for 4 months for PCOS, TSH was 1.1 just before I started and is now 4.8 (T3 and T4 within range). I read up on it before I started and the (limited) research indicated it could be
Hello, wondering if anyone has experience of taking myo-inositol and any impact on their TSH please? I’ve been taking it for 4 months for PCOS, TSH was 1.1 just before I started and is now 4.8 (T3 and T4 within range). I read up on it before I started and the (limited) research indicated it could be
mountaingoat83
in
Thyroid UK
28 days ago
Experiences with urso, ocaliva and bezafibrate
Hi everyone!I was just curious about your experiences taking a combination of udca, ocaliva 10 mg and bezafibrates. Does it improve the itching? Did you notice any unwanted side effect from bezafibrate, e.g. in kidneys? Thanks for sharing and stay healthy and motivated!
Hi everyone!I was just curious about your experiences taking a combination of udca, ocaliva 10 mg and bezafibrates. Does it improve the itching? Did you notice any unwanted side effect from bezafibrate, e.g. in kidneys? Thanks for sharing and stay healthy and motivated!
nickey8
in
PBC Foundation
1 month ago
Dentistry.
I have PMR and have also been treated for Acoustic Neuroma by Gamma Knife surgery.The Acoustic Neuroma is no longer active but damage remains. I presently take 10mgm Prednisone daily in one dose. I need several dental extractions on the same side (upper jaw). Should I expect my dentist to refer me to
I have PMR and have also been treated for Acoustic Neuroma by Gamma Knife surgery.The Acoustic Neuroma is no longer active but damage remains. I presently take 10mgm Prednisone daily in one dose. I need several dental extractions on the same side (upper jaw). Should I expect my dentist to refer me to
Busyrobyn
in
PMRGCAuk
3 months ago
Could be some positivity for frequent UTI sufferers.
Good morning folks. Just entering the fourth year since my GCA diagnosis and having suffered around 17 UTI's in that time (hospitalised with two) along with constant symptoms in between, I've swallowed tons of D-Mannose, cranberry supplements, given up caffeine, artificial sweeteners, used vaginal pessaries
Good morning folks. Just entering the fourth year since my GCA diagnosis and having suffered around 17 UTI's in that time (hospitalised with two) along with constant symptoms in between, I've swallowed tons of D-Mannose, cranberry supplements, given up caffeine, artificial sweeteners, used vaginal pessaries
strawclutching
in
PMRGCAuk
3 months ago
Pain felt initially with sitting down
The second my bottom hits the couch or chair, I can feel this pressure like sensation in my anus. Does anyone experience the same thing? Do you have a diagnosis? Is this levator Ani or pudendal neuralgia?
The second my bottom hits the couch or chair, I can feel this pressure like sensation in my anus. Does anyone experience the same thing? Do you have a diagnosis? Is this levator Ani or pudendal neuralgia?
Catsandsunsets
in
Pelvic Pain Support Network
3 months ago
D Mannose
Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had this problem for a few years now and the Urologist suggested daily low dose antibiotics which I want to avoid. Despite trying all of the self
Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had this problem for a few years now and the Urologist suggested daily low dose antibiotics which I want to avoid. Despite trying all of the self
RosaD
in
LUPUS UK
3 months ago
Prucalopride & Pelvic floor pain
Hi I have been suffering from rectal & pelvic floor pain for last 18 months. 2 months ago I was placed on Prucalopride as the magnesium citrate they I was taking stopped working. My pelvic floor pain & rectal spasm appears to be getting worse. I used to be able to sleep at night but now struggling
Hi I have been suffering from rectal & pelvic floor pain for last 18 months. 2 months ago I was placed on Prucalopride as the magnesium citrate they I was taking stopped working. My pelvic floor pain & rectal spasm appears to be getting worse. I used to be able to sleep at night but now struggling
Hopetobewell
in
Pelvic Pain Support Network
4 months ago
Sitting...such a pain in the butt
Does anyone experience anal/rectal discomfort when sitting on hard surfaces? I feel it comes and goes What have doctors told you? Have you been diagnosed with levator Ani? Has anything helped?
Does anyone experience anal/rectal discomfort when sitting on hard surfaces? I feel it comes and goes What have doctors told you? Have you been diagnosed with levator Ani? Has anything helped?
Catsandsunsets
in
Pelvic Pain Support Network
4 months ago
cranberry powder?
I may also go down the D mannose route but as that can cause diarrhoea am holding off…….diarrhoea led to a nasty bout of hemorraghic
cystitis
which was quite gruesome! I know u ladies are the experts!
I may also go down the D mannose route but as that can cause diarrhoea am holding off…….diarrhoea led to a nasty bout of hemorraghic
cystitis
which was quite gruesome! I know u ladies are the experts!
RT18
in
PMRGCAuk
3 months ago
D-Mannose and urinary frequency?
I have IC but I'm not getting bladder infections anymore. I did for years. But I have frequency which is keeping me from sleeping. I read about D-Mannose. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8944421/ Would taking D-Mannose have any impact on urinary frequency? It's a stretch, but wondering
I have IC but I'm not getting bladder infections anymore. I did for years. But I have frequency which is keeping me from sleeping. I read about D-Mannose. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8944421/ Would taking D-Mannose have any impact on urinary frequency? It's a stretch, but wondering
ratfancy
in
Bladder Health UK
5 months ago
Panic Attack
I was very stressed as they expect me to drink 2 pints of water beforehand, as I suffer from chronic
cystitis
, that is impossible. Anyone else had this particular panic symptom and how can I prevent it next time? Thanks Ros
I was very stressed as they expect me to drink 2 pints of water beforehand, as I suffer from chronic
cystitis
, that is impossible. Anyone else had this particular panic symptom and how can I prevent it next time? Thanks Ros
Gardener
in
IBS Network
3 months ago
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