mini pill to stop ovulation/ interstitial cystitis or Endo?

[SJ0514]

Hi all i am on the waiting list for Laparoscopy as I have all the symptoms, plus I have confirmed PCOS from scans- I am 44 so can’t take the combined pill but my mid cycle is horrendous! Bladder pain, rectal pain and bleeding, leg pain and severe pelvic pain more so on left hand side, painful sex, nausea etc etc.

I could be waiting another 12 months for the Lap so wondered if the mini pill has helped anyone with symptoms as my Dr said it would stop ovulation. I am worried it will make my skin worse as due to PCOS I have cystic acne ( on antibiotics to help manage it) anyone had bad/good experience with it for acne?

I was then looking into interstitial cystitis as apparently this could be mistaken for Endo and lots of people with Endo get interstitial cystitis as I do have a very weak bladder during this time and lots of pain but it never shows as a water infection, that’s what was taking me to Docs time and time again.

I don’t want to go through laparoscopy for nothing but think maybe my symptoms are more towards Endo? I am sorry it’s long winded but I have been really down lately and I am willing to try anything to help me- Thank you lovely ladies xxxx

[Channy3]

I don’t know hun but I’m sorry ur suffering & I hope they find a definitive answer soon… twelve months for a lap sounds awfully long x

[SJ0514 in reply to Channy3]

Hi and thank you for your reply x I think the only answer to help resolve most of my issues is a full hysterectomy, already waited 4 months for the Lap and heard nothing, completed all of the paperwork to proceed so who knows.. all the best to you sweet xx

[Channy3 in reply to SJ0514]

I hope whichever route u decide on is the best one… all the best to u to xx

[Shangey1]

Hi there SJ0514,Reading your story, and asking for advice, and speaking only for myself, I found the mini pill hugely helped my symptoms while waiting for a diagnostic laparoscopy. I was in hospital three times last yr with symptoms and while waiting for the laparoscopy one of the nurses suggested I try the mini pill (I am 45). I ended up being on it exactly 12months and it hugely reduces symptoms and pain. Meaning I could go back to normal life until I had the laparoscopy. I then had a coil put in so I stay off the pill. It did have other side affects for me, but ones I felt were better than the pain of endo. It made me super hungry and also I had trouble sleeping,but I've always been a light sleeper. Anyway, I just wanted to share, mainly as an idea you could take it just for the time until your laparoscopy. X

[SJ0514 in reply to Shangey1]

Hi there Shangey1 and thank you so much for your reply and sharing your experiences. I hope you are feeling better now and the Mirena coil has helped. I have also opted for this when I have my lap. I have tried the coil before years ago but just the copper one, I didn’t like it but the Dr said I can always have it out if I don’t feel it is helping me. I was concerned the mini pill would flare my acne up as it gets really bad and only the combined pill helped my skin years ago and read that the POP can make acne worse but, like you said I think it is worth a shot! Anything to try and lead a normal life as some days I just can’t see light at the end of the tunnel! All the very best to you x

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