Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

25,813 members • 27,109 posts

All posts for May 2024

A good article on Levodopa (dosage, toxicity, precautions etc)

https://www.ncbi.nlm.nih.gov/books/NBK482140/#:~:text=Patients%20should%20take%20the%20oral,hours%20after%20meals%20containing%20protein.

https://www.ncbi.nlm.nih.gov/books/NBK482140/#:~:text=Patients%20should%20take%2...

Farooqji

•1 month ago

13 Replies

Gene therapy

I know it's not PD but it is a neurological condition and sounds like a hopeful developmentUK toddler has hearing restored in world first gene therapy trial...

I know it's not PD but it is a neurological condition and sounds like a hopeful ...

WinnieThePoo

•1 month ago

7 Replies

How do I add a new treatment?

HU won't take Fatty15 as a new treatment. Probably best, it is too early to tell. Reference...

HU won't take Fatty15 as a new treatment. Probably best, it is too early to tell...

Gcf51

•1 month ago

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Still searching an accurate diagnosis

I have had essential tremors for many years, but doctors now suspect Parkinson's or some other neurological disease, maybe PSP. Little information out there....

I have had essential tremors for many years, but doctors now suspect Parkinson's...

Davoli

•1 month ago

11 Replies

persistent weight loss..

hi, thanks for this page & the ppl on it. 2yrs ago 88kg in the intervening period PD has been confirmed . This morning I weighed in at 70.5kg . I eat x 3...

hi, thanks for this page & the ppl on it. 2yrs ago 88kg in the intervening peri...

MellowYellowcup

•1 month ago

18 Replies

Is there a list of currently active trials using stem cells?

wondering if someone can spare me the time required to look them up one by one

Squarepusher

•1 month ago

16 Replies

Looking forward for your support

Dear colleagues, I am a 71 years old male diagnosed with PD 2 years ago, with a suspicion that symptoms were there 2 years prior to that. Started with Sinemet...

Dear colleagues, I am a 71 years old male diagnosed with PD 2 years ago, with a ...

michelbekhazi

•1 month ago

17 Replies

Dopaminergic Stem Cells created from our own skin are still diseased?

A few days ago, a post was put up with a link to "Stem Cells 101". Towards the bottom of the document was the following: Are there other uses for stem...

A few days ago, a post was put up with a link to "Stem Cells 101". Towards the ...

NextStage

•1 month ago

4 Replies

Rigidity Dominant Parkinson's Disease (Rigid PD)

Dear All, After 9 years of Parkinson's Disease diagnosis, and 4 years of HU, and trying supplements of every 'improvement' story, I think I have it all wrong....

Dear All, After 9 years of Parkinson's Disease diagnosis, and 4 years of HU, and...

JayPwP

•1 month ago

15 Replies

Supplement Cocktail is working (Massive B1 OD) or is it the Fatty15

5/8/24: I am one of two PwP (that I know of) that are taking Fatty15. They have never found their B1 sweet-spot. They are lowering their B1 dose in hopes of...

5/8/24: I am one of two PwP (that I know of) that are taking Fatty15. They have ...

Gcf51

•1 month ago

15 Replies

Need Help Sleeping? THE MOST BORING VIDEO EVER MADE (Microsoft Word tutorial, 1989)

A YouTube video dubbed the 'most boring video of all time' has racked up more than three million views from a legion of fans hailing it as the ultimate sleep...

A YouTube video dubbed the 'most boring video of all time' has racked up more th...

Bolt_Upright

•1 month ago

9 Replies

Dyspnea when off

does anybody gets shortness of breath when levodopa is wearing off😳😳😳😥😥😥😥

does anybody gets shortness of breath when levodopa is wearing off😳😳😳😥😥😥😥...

Rupa88

•1 month ago

5 Replies

Notification list not updating

For the last 6 hours, I am getting the new alerts number on the alerts button but when I open the alerts list, no new notifications are listed. Anyone else...

For the last 6 hours, I am getting the new alerts number on the alerts button bu...

JayPwP

•1 month ago

8 Replies

Gluthathione Intravenous Drips - have you had this treatment?

Have you had IV Glutathione? What was your dosage, length of time and experience? I am considering this treatment and would love to hear if it has helped...

Have you had IV Glutathione? What was your dosage, length of time and experienc...

dvoranel

•1 month ago

5 Replies

how do I reset password? I am in password hell.

I am trying to organize my passwords and I forgot pswrd for this site. I can see where to change it (which requires that I know what it is). I need to reset...

I am trying to organize my passwords and I forgot pswrd for this site. I can se...

Jmellano

•1 month ago

7 Replies

A friend's successful use of high dose thiamine

Four years ago I first posted here, when I was helping out a friend who had recently been diagnosed. She'd had problems for a long time before that, with loss...

Four years ago I first posted here, when I was helping out a friend who had rece...

DaisyMakepiece

•1 month ago

14 Replies

A primer/refresher on Parkinson's Medications

Read the story here : https://www.mayoclinic.org/diseases-conditions/parkinsons-disease/diagnosis-treatment/drc-20376062

Read the story here : https://www.mayoclinic.org/diseases-conditions/parkinso...

pdpatient

•1 month ago

1 Reply

b1 vitamins

what has been your experience with taking B1 supplements? Dosage and frequency?

what has been your experience with taking B1 supplements? Dosage and frequency? ...

Teacher111

•1 month ago

4 Replies

Surgery and PD

I am a 76 year old man who has had PD for nine years now. I developed arthritis in both knees about 18 months ago and was put on the list for knee...

I am a 76 year old man who has had PD for nine years now. I developed arthritis...

JohnAD

•1 month ago

11 Replies

Life expectancy with Parkinson’s

https://fightingparkinsonss.com/2024/05/02/life-expectancy-with-pd-redoubling-my-efforts/ My latest post on a tough subject that is being talked about a lot...

https://fightingparkinsonss.com/2024/05/02/life-expectancy-with-pd-redoubling-my...

blazyb

•1 month ago

19 Replies

How To Make Melatonin Lotion : A More Efficient Way Of Getting Melatonin Compared To Oral Melatonin And A Surprise Finding

A major problem I see with oral melatonin is the very poor bioavailability of oral melatonin, thought to be around 3% in humans as discussed here :...

A major problem I see with oral melatonin is the very poor bioavailability of or...

chartist

•1 month ago

62 Replies

Does anyone use a vibration platform? and if so can recommend a good brand?

Hi there , My husband has PD and we are alwasy wondering what supportive things are out there to keep him strong etc. We want to get a vibration plate for...

Hi there , My husband has PD and we are alwasy wondering what supportive things ...

whitdemo

•1 month ago

10 Replies

help , fatigue, shortness of breath

i am stuck Age 50 Symptoms since 2020 Diagnosed 2022 Started on C/L 100/25x3 Worked well for 6 months Started mild dyskinesia after 9 months, now it is...

i am stuck Age 50 Symptoms since 2020 Diagnosed 2022 Started on C/L 100/25x3...

Rupa88

•1 month ago

5 Replies

Does Mucuna pruriens help

I want to try Mucuna pruriens to reduce my dyskinesia. What is the experience of anyone using it.

I want to try Mucuna pruriens to reduce my dyskinesia. What is the experience of...

Joanne_Joyce

•1 month ago

13 Replies

Navigating the Workplace After Diagnosis

Read the blog post here :...

pdpatient

•1 month ago

1 Reply

Stem cell 101

This could be a good resource for anyone considering this approach. So I figured I would share it here. I got it from a lecture I attended. Claire...

This could be a good resource for anyone considering this approach. So I figure...

gomelgo

•1 month ago

10 Replies

‘I couldn’t walk’: GP’s personal story of vitamin B6 toxicity

‘A review of the patient’s vitamin B6 intake is recommended, paying close attention to potential sources such as multivitamins and magnesium and zinc products,...

‘A review of the patient’s vitamin B6 intake is recommended, paying close attent...

Farooqji

•1 month ago

34 Replies

Intense leg cramps

Parkinson's Meds 2C/L 25-100 4x per day- 6am, 10am, 2pm, 6pm 1 Amantadine 2x per day 1 C/L ER at bedtime Diagnosed in 2017, started medication a year...

Parkinson's Meds 2C/L 25-100 4x per day- 6am, 10am, 2pm, 6pm 1 Amantadine 2x...

mleec

•1 month ago

47 Replies

Blood pressure, heart rate and food allergies

Some time ago I read a piece of research on the effect of a person having unknown food allergies and the effect of it on BP and heart rate It involved taking...

Some time ago I read a piece of research on the effect of a person having unknow...

M-o-ggy

•1 month ago

4 Replies

Biting the bullet

After three years of fighting PD with exercise I am starting Madopar, wish me luck I will keep exercising 🏄

After three years of fighting PD with exercise I am starting Madopar, wish me lu...

Headache58

•1 month ago

20 Replies

Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

All posts for May 2024

A good article on Levodopa (dosage, toxicity, precautions etc)

Gene therapy

How do I add a new treatment?

Still searching an accurate diagnosis

persistent weight loss..

Is there a list of currently active trials using stem cells?

Looking forward for your support

Dopaminergic Stem Cells created from our own skin are still diseased?

Rigidity Dominant Parkinson's Disease (Rigid PD)

Supplement Cocktail is working (Massive B1 OD) or is it the Fatty15

Need Help Sleeping? THE MOST BORING VIDEO EVER MADE (Microsoft Word tutorial, 1989)

Dyspnea when off

Notification list not updating

Gluthathione Intravenous Drips - have you had this treatment?

how do I reset password? I am in password hell.

A friend's successful use of high dose thiamine

A primer/refresher on Parkinson's Medications

b1 vitamins

Surgery and PD

Life expectancy with Parkinson’s

How To Make Melatonin Lotion : A More Efficient Way Of Getting Melatonin Compared To Oral Melatonin And A Surprise Finding

Does anyone use a vibration platform? and if so can recommend a good brand?

help , fatigue, shortness of breath

Does Mucuna pruriens help

Navigating the Workplace After Diagnosis

Stem cell 101

‘I couldn’t walk’: GP’s personal story of vitamin B6 toxicity

Intense leg cramps

Blood pressure, heart rate and food allergies

Biting the bullet

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