Looking forward for your support

[michelbekhazi]

Dear colleagues, I am a 71 years old male diagnosed with PD 2 years ago, with a suspicion that symptoms were there 2 years prior to that. Started with Sinemet for 10 days but could not tolerate it and, since then, I am on 6 tablets of Sifrol 0.18 per day (2/2/2). This dose of sifrol improved my general symptoms by 90% but with balance and walking the improvement was approx 70% . I learned o live with it.

Approx 3 months ago, I noticed a decline in balance and walking. My neurologist asked to increase my dose by 50% to 9 tablets per day (3/3/3) which I did for 7 weeks with no improvement at all, so I went back to the old dose without consultation with the neurologist.

I an scared of facing further decline and would appreciate any advice or recommendation. From experience with this group, I noticed that the collective advice given may be equal,or even superior, to that of a medical specialist. Thank you all

[chartist]

Give consideration to Vitamin B1. Many forum members have found it beneficial for reducing symptoms.

healthunlocked.com/cure-par...

Art

[park_bear in reply to chartist]

I second that recommendation. Additional links here. Allow four months for full effect:

b1parkinsons.org/

healthunlocked.com/cure-par...

healthunlocked.com/cure-par...

facebook.com/groups/parkins...

A good source of thiamine HCl is here:

vitacost.com/vitacost-vitam...

[michelbekhazi in reply to park_bear]

Appreciate the links park bear, will go through each, Many thanks

[Quentinkal in reply to park_bear]

Thanks for the links Park Bear.

[michelbekhazi in reply to chartist]

Thanks Art, will do

[Fed1000]

What kind of problem did Sinemet give you?

[Fed1000 in reply to Fed1000]

Nausea by any chance?

[michelbekhazi in reply to Fed1000]

Indeed severe nausea, vomiting and unbearable headache

[Fed1000 in reply to michelbekhazi]

Hi Michel, I too had more or less the same symptoms, especially nausea. These symptoms are recurrent in pwp who use Sinemet. I'm not a doctor but I solved the problem by dividing the pill into two parts and taking them 30/40 minuti apart from each other. As they say, it costs nothing to try. I hope you solve the problem.

[Fed1000 in reply to Fed1000]

I forgot to tell you that even if it's half a pill, it can cause nausea if we're in the car, even just as a passenger. It does this to me. Therefore, unless I am driving, I alwais wait 30' to 40'.

[michelbekhazi in reply to Fed1000]

many tks for sharing this idea: simple yet creative, I will definitely try it🙏🙏👍

[bigl62]

I had complications with C/L medicine when I first started with no symptomatic improvements. I was tested for H-pylori and treated. Then the medicine began to work . I went from 40% of normal functioning to 85%Get checked . Google H-pylori and parkinson's for case studies

[michelbekhazi in reply to bigl62]

many tks for sharing, i will follow up on the H-Pylori test

[Hidden]

I had nausea problems when I was initially prescribed Sinemet. I was taking the standard "instant" release version of Sinemet. When my neurologist, at that time, switched out half my Sinemet dosage to the "delayed" release version, my nausea decreased considerably.

[michelbekhazi in reply to Hidden]

Thanks for sharing, a good to know practice,

[JohnPepper]

I was diagnosed in 1992 and was put onto every known medication, with no positive result.

I then started to walk as fast as I could, for a maximum of one hour, every second day.'

Within two years I no longer had any PD movement symptoms. It costs nothing. Every week I made a note of my times and I soo got as fit as a fiddle.

I am now 89 years old and have had PD for32 years, but nobody would ever know!'

Contact me!

John

[Gymsack]

My vote

I would try a very small dose of sinemet again , start small. The tablet brecks into half. maybe start with one half a tablet a day and when you have determined how long it lasts then you can go to two doses. etc. Yes it takes some getting used to , but I found it worth while . Drink lots of liquids and excess CD/LD will be removed.

[michelbekhazi in reply to Gymsack]

Thanks for the recommendation,it makes a lot of sense 👍👍