Does Mucuna pruriens help

[Joanne_Joyce]

I want to try Mucuna pruriens to reduce my dyskinesia. What is the experience of anyone using it.

[Thal]

My experience after 8 years and hundreds of dollars has been total frustration to the point I've just thrown out 3 bags of powder and a bottle of capsules. Mucuna has been totally UNPREDICTABLE . Dosage and timing erractic. Potency unreliable. Quality and sources are suspect. May even be CONTAMINATED with heavy metals, pollutants and who knows what . Not a medicine and not a good herb. If you want and need a medicine get it from a licensed pharmacist where quality, dosage, timing, counter indications and effects are quantified through clinical testing. And there are a variety of medicines available for different issues other than plain old sinemet etc. I'm liking entacapone these days. Wish I had run into it sooner and listened to my doctor neurologist. Herbs and potions are for shamans and witch doctors. Stick with the pros. You'll be happier. And you may have recourse if it does not work otherwise you're on your own floundering and suffering as I have.

Also your doctor's job will work better since he's not not dealing with a terrible product that counteracts good medicine. Hope this helps you get the results you need.

[Despe in reply to Thal]

Did you ever add 1/2 t of carbidopa to your MP?

[Thal in reply to Despe]

No and I've learned that tinkering with drugs is probably not heathy. Leave it to the pros.

[Despe in reply to Thal]

I did leave it to the pros, "Dr. Isaacs/ MDS, at Vanderbilt. He recommended it as he was/is very knowledgeable of all natural levodopa available! He doesn't just push meds!!!

[Juliegrace]

Mucuna gave me dyskinesia the same as c/l.

[Farooqji in reply to Juliegrace]

Do you use mucuna extract or raw powder

[Juliegrace in reply to Farooqji]

It was a long time ago, but I tried every extract from 15% to 100%.

[Farooqji in reply to Juliegrace]

Try raw powder if possible. It contains other ingredients which act synergetically with Ldopa content

[Edge999]

trying it for the last few weeks but im only 1.5 years into Parkinson . Doesn’t make me sick like madopar but doesn’t seem to do alot yet. Theres a good facebook site on it

[Tayogi]

check out this group on facebook m.facebook.com/groups/32883...

[Joanne_Joyce in reply to Tayogi]

Thanks. I found it and it is very encouraging.

[Rscott]

it did not work for me. We tried increasing the dosage slightly each week for several weeks until my head started swimming and I couldn’t think clearly. I decided to stop since I would rather enjoy life. By the way, it was part of a so-called amino therapy protocol, but they gave me excessive doses of B6, which caused me permanent nerve damage.

[Despe in reply to Rscott]

See my reply above.

[JohnPepper]

I don't use anything other than common sense! I was diagnosed in 1992 and started to do fast walking for up to one hour, every second day and have been symptom-free since 1996. I am now 89 and still living a good life.

Speak to me!

[Joanne_Joyce in reply to JohnPepper]

Hi John. We have communicated over the years but you share your experience with so many people it is understandable that you don't remember me . I am happy to learn that you are doing well. I am 83 years old and I live in Nigeria. Three years ago I fell and broke my hip and am now a wheelchair user. I admire your determination to encourage fast walking despite the rude and insulting reactions you sometimes receive. I believe there are many people who have benefited from your experience.

[JohnPepper in reply to Joanne_Joyce]

Yes! There are hundreds, if not thousands of other PD patients all over the world who do what I am doing and many have written to tell me of their experiences.

[CV119 in reply to JohnPepper]

Could you kindly recommend any specific supplements you take or anything outside the standard medical care you do that has helped you kept going with good quality of life?